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  1. 100’s of Hearts

    Every day, there are over 100 babies born with a heart defect in the U.S. That’s thousands of hearts each year. Add those to the 100’s and 100’s and 100’s who are already living with heart defects. That’s millions of hearts. But let’s bring into focus just one heart. That one baby who, by all…

  2. Even more new things…

    I thought launching accounts in Facebook,Twitter, LinkedIn, and Instagram was quite an accomplishment for PCHA.  But wait – there’s more!  Official Newsletter PCHA just sent out its first official newsletter.  Don’t miss out on any behind the scenes information, updates on our latest projects, and opportunities to volunteer or advocate.  Click here to find our rudimentary sign-up form on…

  3. PCHA goes social…

    Well, after a week of trial, error and lots and lots of learning…  The Pediatric Congenital Heart Association is now social.   Find us on Facebook, Twitter,LinkedIn, and Instagram.Don’t forget about our website! Facebook: Pediatric Congenital Heart Association Find us, like us, share us.  Share with us – tell us what you’ve been up to, why CHD education, advocacy…

  4. Zoe Lihn

    Zoe Lihn

    In December of 2009, Stacey earned her title as “heart mom” when her unborn daughter was diagnosed with Hypoplastic Left Heart Syndrome at 18 weeks gestation.

  5. Today is your day, what will you do?

    A thought provoking and sweet call to action! (Honestly, it makes me want to make a heart out of Jelly Beans to hang on my wall!)

  6. 4 things to do during National Birth Defects Prevention Month

    Congenital heart defects are the most common birth defect.  Period. Part of Conquering CHD means working to make sure that they don’t happen in the first place. Let’s support the CDC and the National Birth Defect Prevention Network’s efforts to prevent birth defects. Here’s what you can do! 1) National Birth Defects Prevention Month Tweet-Up–…

  7. Fixed? Not so much

    We. Must. Keep. Fighting. 9 years ago, today, at 12:30pm I heard it.  Standing in the hallway with his lunch tray in hands (I had missed post-surgical rounds, but that’s another story,) the world renowned Dr. Tweddle told me that Nicholas was fixed.  Yep, “fixed.”   A week later our amazing pediatric cardiologist told me…

  8. Rayna

    Rayna Schuh

    In June of 2006 my husband Tim and I found out that our family would be blessed with the gift of baby. As you can imagine we were excited and anxiously awaiting that first Dr.’s appointment to hear our new baby’s heartbeat.

  9. Tribute to TinMan

    So unexpectedly and deeply affected by the loss of Nolan.  I had not met him, or his parents, merely an onlooker to his journey.  Yet, my heart is breaking for his family.  For all those who have lost a child to CHD. We must keep fighting. [vimeo http://vimeo.com/83506422] From the website: On January 5, 2014,…

  10. JanYOUary – Celebrating YOU!!

    It seems like every month has become symbolic for an issue, or two or three. Right now, the CHD community is gearing up for February Awareness month. (We’re a little bit excited over here!!) (Thanks Heart Hugs for the image!) However, I saw a promo touting this month as JanYOUary and it made me stop…

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