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  1. Action Alert – Support Congenital Heart Disease Research Funding

    Email your legislators: FUNDING CDC DATA COLLECTION   Action Needed Email your lawmakers and ask them to provide $7M to fund CDC surveillance efforts. Visit your lawmaker’s website where you will find a contact us form.  You can find their website at www.house.gov or www.senate.gov Using the suggested talking points and your own personal information, edit…

  2. Webinar: Awareness, Knowledge, Action – Congenital Heart Disease Advocacy

    Awareness, Knowledge, Action: Why you should care about advocacy, and what you can do! Watch the Webinar today!!! This introductory look into advocacy provides quick and easy ways to get started. We are encouraging everyone to learn how to get involved and be a part of something bigger! By watching this video, you will: Learn…

  3. Congenital Heart Awareness – from our Partners at the CDC

    Today’s guest post comes to us from the Centers for Disease Control and Prevention (CDC).  With-in the CDC, the National Center for Birth Defects and Developmental Disabilities (NCBDDD) is dedicated to helping people live to the fullest. They have been incredible champions for congenital heart defects and we are privileged to have them as a partner!…

  4. 5 Myths About Telling Your Story

    Your story can be a very useful tool when working with others to make a difference. Move past the myths and share your story on our website! 1) No one wants to hear my personal story. What you tell your friends is one thing.  But, it’s different when you are telling your story to a…

  5. Mirabel Atkinson

    Nine-year-old twins, Mirabel and Sofia, share a special bond.  Born at 32-weeks, they were more exceptional than most identical twins in that they shared a placenta and an amniotic sac.  But one significant difference they have is that Mirabel was born with a congenital heart defect, or several to be more precise, including hypoplastic right…

  6. Understanding and Treating Heart Defects – National Institutes of Health

    Today’s guest post comes to us from the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health. The NHLBI oversees several large research programs focused on heart disease in children and funds scientists at hospitals and universities throughout the United States who research the causes and problems associated with congenital…

  7. Cooper Whitehurst

    My son, Cooper, is my heart hero. Cooper came into our lives completely blue, motionless, not breathing, and with a faint heart beat. We watched helplessly as a doctor and nurse performed CPR on him the first two minutes of his life until he finally took his first breath. From the moment he was born,…

  8. Save the Date! Webinar – March 20

    Awareness, Knowledge, Action: Why you should care about advocacy, and what you can do! We are encouraging everyone to learn how to get involved and be a part of something bigger! March 20th; 8pm ET/ 7pm CT Join us – Learn why it is important to move beyond awareness to knowledge and advocacy. Get up to…