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  1. Advocates in Action

    We recently sent out an Action Alert, asking you, our incredible advocates, to contact your legislators to request increased research funding. Many of you sprung into action.  Here are a few cute snip-its: 1) Say Cheese! Mirabel, her twin sister and her mom, stopped by Capital Hill to visit Congresswoman DeLauro’s amazing staff person, Eric…

  2. CHD Symposium, June 21

    The Children’s Heart Foundation, Mended Little Hearts and the Pediatric Congenital Heart Association have joined together to host a National Congenital Heart Defect Symposium. Join us to hear firsthand updates from renowned speakers in congenital heart defect (CHD) treatment and about issues that affect children living with CHDs, including clinical updates, neurodevelopmental issues, exercise, and transitioning to adult CHD care. Get inspired…

  3. Kieran Touney

    When Kieran was born, I felt like I was giving birth in a theater filled with an expectant audience—a repertoire of doctors stood around, anticipation on their faces, waiting to spring into action. As Kieran had been diagnosed with HLHS during our 20-week ultrasound, we were all ready for him—OB, residents, nurses, neonatologist, cardiology fellows,…

  4. Thank You Volunteers!

    Recognizing Volunteer Appreciation Week, April 6-12, 2014 It’s time to do some appreciating!!!  Thank you to the more than 100 volunteers who have stepped up to partner with PCHA.  Together, we are doing great things. Last night, my son asked if we could “pay it forward” and buy the meal for the person behind us…

  5. Gregory Guzzo

    Gregory has a congenital heart defect, yet we never knew until a few months ago. Gregory is an active child and 13 years old. He wrestled for 5 plus years, played soccer, never sits still unless he is playing XBox and even then he is standing and jumping around. Out of the blue, as he…