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  1. Hospital Costs and Resource Use for Children and Adolescents with Congenital Heart Defects

       In a recent study titled ‘Pediatric inpatient hospital resource use for congenital heart defects,’ published in Birth Defects Research Part A, CDC researchers found that in 2009, hospitalized U.S. children and adolescents who had a congenital heart defect had more expensive hospital stays than those who were hospitalized without a congenital heart defect. The most expensive hospital…

  2. Wabi-Sabi: The beauty of our scars

    “Wabi-sabi is a beauty of things imperfect, impermanent, and incomplete. It is the beauty of things modest and humble. It is the beauty of things unconventional.” –Nancy Walkup, from Japanese Aesthetics, Wabi-Sabi, and the Tea Ceremony   My son, Kieran, has a wabi-sabi heart. As a child with HLHS (hypoplastic left heart syndrome), his heart…

  3. Buczko Twins

    Our twins, Aiden and Madison were born at The Children’s Hospital of Philadelphia in September 2012 at just 31 weeks gestation, both with critical congenital heart defects.  Aiden was born with an isolated left pulmonary artery and right aortic arch. He had his first, and hopefully, only, open heart surgery at three weeks old. Madison…

  4. Norah’s Story

    Norah was born in 2009, seemingly healthy. At two weeks old she was hospitalized at Blank Children’s Hospital in Des Moines, IA for having had a UTI. She was referred to the University of Iowa Children’s hospital and diagnosed w Grade IV Bilateral Vesicoureteral Reflux. After a year of prophylactic antibiotic The Lord healed her…

  5. A Day in Little Rock

    The perspective was daunting. There, in the cafeteria of Arkansas Children’s Hospital, behind tinted windows, gazing out over I630 I counted the endless number of cars that passed and wondered, “Do any of these drivers know what’s going on in here?” With my well earned cafeteria bucks (earned from endless hours in the NICU pumping…