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  1. New Legislative Champions Added

    Congenital Heart Disease advocates from the Pediatric Congenital Heart Association visited, emailed and called their legislators, yesterday asking the members of Congress to support CHD research and surveillance. Advocacy worked! We have already added new legislative champions to the list with new Caucus members and Dear Colleague Signers.  Check out the Legislative Champions list to see…

  2. ACTION ALERT: A Community United for CHD

    Encourage your members of Congress to support congenital heart disease research – call or email them, today. On February 26, 2015, congenital heart disease (CHD) advocates from across the country, representing more than 10 organizations are reaching out to their lawmakers to ask for three things: Provide $10.0 million in FY2016 to the Center for Disease…

  3. ACTION ALERT: Email Congress a Reception Invitation

    Encourage your member of Congress to learn more about congenital heart disease. Invite them to attend the Congenital Heart Reception in conjunction with our Congenital Heart Legislative Conference. Send an email today to encourage your members to attend. Take action in three easy steps: 1) Find your legislator’s contact information. If this is your first…

  4. Christopher Memoli

    Growing up with a Rare Congenital Heart Disease-Christopher Memoli is a survivor of a major heart defect known as Congenitally Corrected Transposition of the Great Arteries (CCTGA). He had his first open heart surgery at 19 years old and his second open heart surgery at 44 years old. Despite the challenges of his condition, he…

  5. Webinar: 2015 Advocacy Update

    Wondering what “advocacy” is all about? Can’t go to Washington D.C. but want to participate anyway? Interested in knowing what the Pediatric Congenital Heart Association priorities are this year? Our 2015 Advocacy update will answer precisely those questions! 2015 Advocacy Update Tuesday, February 17th 7:30pm ET/6:30pm CT Click here to register Join us to learn more…

  6. Help Monitor and Manage CHD

    The Pediatric Congenital Heart Association is pleased to support the efforts of the American College of Cardiology to bring you this opportunity: Whether you are a parent caring for a child with congenital heart disease, or an adult managing your own care, NoMoreClipboard personal health records (PHRs) are a secure, online solution for tracking and…

  7. Give From Your Heart

    It’s February and most of us are thinking about hearts. Unfortunately, not enough folks are thinking about congenital heart defects. PCHA has been hard at work to change that. In just a few short weeks we will be co-hosting the Congenital Heart Legislative Conference in Washington D.C., where more than 100 advocates will visit their lawmakers and…