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  1. Action Alert – Dear Colleague Letter

            Thank you to those of you who sent an email to your member of Congress – our advocacy efforts are working –  the Dear Colleague Letter in the House has reached 24 signatures!   Now, we need to focus on the Senate! Send an email to your Senator, today.   Building Champions for congenital…

  2. HLHS Dad goes to Washington D.C.; Part 2

    Chris Perez attended the Congenital Heart Legislative Conference on February 25-26, 2015.  Here, he writes about the first day of this adventure. As the father of a child with a serious congenital heart defect, Chris regularly writes about his experiences in the CHD world on his blog: Half Heart. Whole Life. Read the first part of his story…

  3. Finding Hope in Washington D.C.

    Tori is  mom to 6 amazing children. 1 grown daughter and 5 boys. 4 are here on Earth and 1 is forever 13 months old and watching over us from heaven. You can read more about her journey on her blog: Finding Hope without Sterling. She has been a tremendous advocate for the Pediatric Congenital Heart…

  4. Advocacy Works – Dear Colleague Letter

    Thanks to the amazing efforts of advocates – great things are happening in D.C.! Senate Dear Colleague Letter: In fact – in direct response to a visit by his constituents, Senator Grassley has agreed to be the Republican Co-Author of the Senate Dear Colleague Letter with Senator Dick Durbin!  We are expecting the letter to…

  5. HLHS Dad goes to Washington D.C.; Part 1

    Chris Perez attended the Congenital Heart Legislative Conference on February 25-26, 2015.  Here, he writes about the first day of this adventure. As the father of a child with a serious congenital heart defect, Chris regularly writes about his experiences in the CHD world on his blog: Half Heart. Whole Life. As Day 1 began to arrive it…

  6. Volunteer Opportunities

    Be a part of something bigger. The mission of the Pediatric Congenital Heart Association is to Conquer Congenital Heart Disease.  We know that we cannot do it alone. PCHA is growing rapidly in size, reach and programming!  We are forming several new volunteer parent/patient committees and need your help to make them a success. Getting…