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  1. Legislative Champions – April Update

    The Pediatric Congenital Heart Association, along with all of our amazing advocates, has been working hard to build legislative champions in Congress – lawmakers who have expressed an interest in CHD and have taken initiative by publicly supporting our issues. Legislative Champions Be sure to check out our updated List of Congenital Heart Legislative Champions! This list includes…

  2. ACE Kids Act – Better care for complex kids

    The Pediatric Congenital Heart Association has offered endorsement and support of the Advancing Care for Exceptional Kids Act (ACE Kids Act) of 2015 (S. 298/H.R. 546) in a letter sent this week to the bill’s sponsors, Senators Grassley and Bennet and Representatives Barton and Castor.  . Congenital heart disease (CHD) is the most common birth defect with nearly 1…

  3. Advocacy Success: Children’s Health Coverage Extension Passes

    Thank you to those of you who shared our action alert, called or emailed your members. Our friends at March Of Dimes said it best: Victory — Congress Passes Two Year CHIP Extension!       Last night, the Senate voted 92-8 to extend funding for the Children’s Health Insurance Program (CHIP) through September 2017!…

  4. Unexpected Hero

    Special thanks to Mark Gentle who agreed to share his son’s story with us. The following photo was also shared with permission. He was scarred.  He was scared.  And now, he’s a superhero. Carter recently underwent open heart surgery to repair a problem with his heart he has had since he was born. The surgery left a…

  5. Support Children’s Health Care Coverage

    The Pediatric Congenital Heart Association supports access to specialized care that is vitally necessary for children with CHD. PCHA strongly urges the Senate to support a four-year funding extension to the Children’s Health Insurance Program (CHIP), which provides quality health insurance for more than eight million children with families too high to qualify for Medicaid…

  6. Can You Hear Me Now?

    Guest Blogger Chris Perez knows first hand that even the littlest action can have a big impact. The Pediatric Congenital Heart Association offers many ways to get involved.  Click on any of the following for more information or to get involved: volunteering, contacting your lawmakers, sharing your story.  By working together, even the smallest of…