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  1. Supporting Development in Children with CHD

    The Pediatric Congenital Heart Association recognizes that with increasing knowledge of issues relating to long term outcomes for children with congenital heart disease, as a parent, it can be difficult to understand what it might mean for your child. In 2014, the American Heart Association published an article by leading neurodevelopmental and pscyho-social experts, including PCHA Medical…

  2. Media Advocacy

    “Advocacy groups have carved a niche for themselves in the broadcast industry’s policy-making apparatus by first defining key public interest issues and then by advocating ways by which broadcasters may address these issues.” – Museum of Broadcast Communications  PCHA has seen the tremendous benefits of social media advocacy. In the first half of May two of our…

  3. PCHA and YOU! – Town Hall Meeting

    Connect, Learn and Lead: PCHA TOWN HALL MEETING May 28, 2015 1pm ET Click here to register Join Executive Director, David Kasnic, and Director of Programs, Amy Basken, for our first, ever, PCHA Town Hall Meeting.  During this interactive webinar, you will be provided with a brief update on PCHA programs, and then have the…

  4. Pulse-ox Screening: New Key findings

    The Pediatric Congenital Heart Association supports early detection of critical congenital heart disease, including CCHD screening through the use of pulse-oximetry. The journal Pediatrics has published a new study estimating the number of infants with critical congenital heart defects (critical CHDs) potentially detected or missed through universal screening for critical CHDs using pulse oximetry. CDC…

  5. Ultra-Marathon Runners: The Value of Continuing Support for CHD Families

    The Pediatric Congenital Heart Association recognizes the need for open, honest communication to empower patients and parents of children with CHD.  As Margaret describes, support can come from many people: doctors, nurses, or those who have walked this journey ahead of us.  The need for support does not end when you leave the hospital. Contact your…

  6. Charting our future together: NHLBI’s Strategic Visioning Process

    An announcement from the National Heart, Lung, and Blood Institute (NHLBI).  Join the Pediatric Congenital Heart Association in advocating for CHD research by sharing what you believe are the challenges facing children and adults with congenital heart disease. We encourage you to take a moment and participate: The National Heart, Lung, and Blood Institute (NHLBI)…