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  1. Give CHD a Voice – #GivingTuesday 2015

      Join millions of generous donors on what has become a national day of giving. “Give a gift that matters.” By donating to PCHA today, you will help Give CHD a Voice. Your gift will:​ – Build our Advocacy Network – Train CHD advocates – Educate our lawmakers – Secure millions of dollars in CHD research…

  2. Shoes Worthy of a Heart Hero

    The Pediatric Congenital Heart Association celebrates creative efforts to raise awareness and educate the public about congenital heart disease.  This post was written by Jacob’s mom to recognize his incredible achievement!   In September 2014, Jacob Burris was unexpectedly diagnosed with a CHD known as a coarctation of the aorta.  His disconnected aorta was repaired surgically last…

  3. It’s In Your Hands

    Being a heart parent isn’t easy. That’s no news flash. You’ve run the gamut of emotions from scared, to sad, to angry, then rinse and repeat. Oh yeah, and life doesn’t stop and wait for you to get it together either. There are days where you feel like maybe you’re starting to get it together,…

  4. ACTION ALERT: Tell Congress to Support CHD

    Action Needed –  Email your legislators: Co-Sponsor the Congenital Heart Futures Reauthorization Act   Email your lawmakers and ask them to co-sponsor the Congenital Heart Futures Reauthorization Act (S.2248/H.R.3952.) Visit your lawmaker’s website where you will find a “contact us” form.  You can find their website at www.house.gov or www.senate.gov.  If you are a veteran advocate,…

  5. Congenital Heart Futures Reauthorization Act (S.2248/H.R.3952)

    Congenital Heart Disease Legislation In November, 2015, the Congenital Heart Futures Act Reauthorization Bill was introduced in the Senate (S.2248) and House (H.R.3952) by legislative champions: Senator Dick Durbin (D-IL) Senator Bob Casey (D-PA) Representative Gus Bilirakis (R-FL) Representative Adam Schiff (D-CA)     Current Cosponsors (Updated 3/8/16) Senate Cosponsors Sessions, Jefferson “Jeff” [R-AL] – (joined Nov 16, 2015) Bennet,…

  6. Congenital Heart Legislative Conference 2016

    Registration is now closed but be sure to stay tuned for opportunities to get involved from home!   The Adult Congenital Heart Association, Children’s Heart Foundation, and Pediatric Congenital Heart Association invite you to attend Congenital Heart Legislative Conference 2016 February 1-2, 2016 Liaison Capitol Hill Hotel, Washington D.C.   Your voice matters as we…