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  1. Mothers Blog Series Recap

    Your voice matters. For the month of May, PCHA recognized mothers of children with CHD through our Mothers Blog series. The fight to conquer CHD is strengthened by the involvement of all of those who share our mission. It takes a community coming together around education, research and awareness to make an impact. Volunteer, join our advocacy network today, and…

  2. Mamas, May the FORCE Be With You!

    To close our Mothers Blog series for May, PCHA is delighted to have guest writer Jennifer Page, probably best known to you as Mini Darth Vader’s mom! Her son Max was the Mini Darth Vader from the 2011 VW Superbowl commercial. Jennifer speaks nationally about her family’s journey of transformation. She is a special contributor to CNN, Ladies Home…

  3. A Mom’s Promise of Hope

    PCHA is honored to have Tori Smith, a volunteer on the Program Committee, speak about her son Sterling. She recently led a bereavement breakout session at the Congenital Heart Legislative Conference in Washington, DC in February 2016. When Sterling died I hurt. Physically. Every inch of my body was feeling the pain of losing my son. In…

  4. Finding the Spirit of Mother’s Day, Every Day

    Speaking from her own experience, our recurring guest writer Margaret King joins us this month for the PCHA’s Mothers Blog series with her advice on relieving stress and finding joy.  Mother’s Day has come and gone with ads selling products designed to give us relaxation and joy – massages, flowers, jewelry, and more. And if those products…

  5. Prevailing Over the Unexpected

    Continuing our month long celebration of mothers, Jessica Chenevert, who is an advocate, committee member, and Social Media Coordinator for the Pediatric Congenital Heart Association, shares how CHD has shaped her perspective on motherhood.  There’s changing table stocked with diapers, wipes, and creams. The book shelf is packed and the stuffed animals are all in a row. The…

  6. Expecting a Rainbow Baby: Pregnancy After CHD

    PCHA is fortunate to have Jen DeBouver share her experience and advice on pregnancy after CHD. She is currently expecting Nina Delilah, her rainbow baby, a child born after a miscarriage, stillbirth, or child loss, this August. It came as a total surprise. Pregnant after 3 ½ years since losing my son Asher to CHD….

  7. A Thank You Note to Our CICU Nurse

    Nurses are an integral part of CHD care, and we are so thankful for them! During National Nurses Appreciation Week, in conjunction with our Mothers Blog series, we share a letter from a mother to her child’s nurse. To the nurse who taught me how to be a new kind of mother, We raced through the CICU doors,…

  8. Research Matters: An Innovative Treatment for Plastic Bronchitis – What it Means

    The Pediatric Congenital Heart Association is thrilled to bring our latest in the series titled Research Matters. In our commitment to make research meaningful and accessible to patients and families, volunteers along with members of our Medical Advisory Board have created summaries of important research and describe what it means for you.

    Plastic bronchitis (PB) is a rare but life-threatening complication that can arise following the Fontan procedure. PB patients develop large

  9. Mother’s Q&A Panel

    Throughout May the Pediatric Congenital Heart Association is honoring Mothers by covering relatable topics through our guest blog posts. To kick off this month, we have five amazing moms of children diagnosed with CHD joining us for a Mother’s Q&A Panel. Thank you for taking the time to share with us! Let’s get started with introductions. Can you…