search
  1. Fathers Blog Series Recap

    Your voice matters. For the month of June, PCHA recognized dads of children with CHD through our Fathers Blog series. The fight to conquer CHD is strengthened by the involvement of all of those who share our mission. It takes a community coming together around education, research and awareness to make an impact. Volunteer, join our advocacy network today, and…

  2. Being Present

    It has been incredible hearing from dads all month! Bill Foley, Executive Director of the Children’s Heart Foundation, writes about his experience as a father. As a dad, my instinct is to be the strong one who fixes everything. However, when my son was born with congenital heart disease (CHD), I realized I was incapable of fixing…

  3. Father’s Q&A Panel

    Throughout June, the Pediatric Congenital Heart Association has been honoring Fathers by covering relatable topics through our guest blog posts. As we near the end of our series, we have four incredible dads of children diagnosed with CHD joining us for a Father’s Q&A Panel. Thank you for taking the time to share with us! Please introduce yourself. David…

  4. A Letter To My Son

    PCHA wishes all dads a Happy Father’s Day! We’re happy to share this letter written by Nolan Chenevert, who celebrates his second year as a dad to his son Barrett “Bear”. Dear Barrett, I remember so vividly how excited I was when your mom first told me that I was going to be a dad. I…

  5. A Father’s Loss, and Life After

    As Father’s Day approaches, PCHA would like to acknowledge fathers, and all parents, who have lost a child. We are privileged to have Trey Flynn share his story on loss and life after.  We’ll never forget our child’s last breath.  No matter how hard we try and create a new and happy ending in our dreams, the pain is…

  6. Making the (Heart) World a Better Place

    PCHA is pleased to welcome back recurring guest writer Chris Perez for our Fathers Blog series. Let’s get one thing out of the way: the day you looked at the grainy ultrasound image as your wife’s doctor started his or her sentence with “unfortunately” or the moment you realized your newborn would be whisked away via ambulance…

  7. Update: Save vital CHD research funding!

    Advocacy Works: Senator Durbin’s Amendment to support research not red tape passed yesterday afternoon with a bi-partisan win of 66-32. A huge thank you to all of you who have called, tweeted and shared your stories.  National advocacy efforts were mentioned multiple times during the debates, including a letter that PCHA joined with 142 other advocacy…

  8. A Story and a Scar

    Throughout June the Pediatric Congenital Heart Association is honoring Fathers by covering relatable topics through our guest blog posts. To kick off this month, we’re honored to have writer Rob Hart share his story. Thirty minutes after my wife and I walked through the front door of Richmond University Medical Center, our daughter Abigail Joule was born….

  9. Calling on Congress to Support Research, Not Red Tape

    The Pediatric Congenital Heart Association is urging Senators to support Illinois Senator Durbin’s Amendment #4369 to S. 2943, the fiscal year 2017 National Defense Authorization Act.  By eliminating Sections 756 and 898 of the legislation, this amendment will ensure that the critical, cutting-edge congenital heart disease research happening at the Department of Defense (DoD) can continue….