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  1. Research Blog Series Recap

    For the month of October, PCHA recognized the importance of Research. All different kinds of research are vital to finding a treatment and an eventual cure for CHD and we thank all the clinicians, scientists, and patient volunteers for their important contributions to CHD research. The fight to conquer CHD is strengthened by the involvement of…

  2. Research Matters: Why Should My Child Participate in Clinical Research?

    As we continue with our theme of research for the month of October, PCHA welcomes back NIH medical officer and pediatric cardiologist Dr. Kristin Burns. Dr. Burns answers some frequently asked questions about clinical research and provides information about ongoing clinical research studies.     Have you ever noticed flyers posted in the waiting room…

  3. Research Matters: Genetic Link Between CHD and Neurodevelopmental Disorders

    As we continue with our focus on genetics and genomics research, PCHA welcomes NIH medical officer Dr. Jonathan Kaltman. Dr. Kaltman provides an overview of a recent study that uses genomic data to establish a genetic link between congenital heart disease (CHD) and neurodevelopmental disorders. This study provides an important example of how genetics and…

  4. Research Matters: Genetics and Genomics Research – Why It Matters

    This week, PCHA focuses on genetics and genomics research and discusses why these studies are important for understanding the underlying genetic causes of CHD. At some point during a hospital visit, you may have been asked to enroll your child in a genetic study. To help parents and caregivers make a more informed decision about…

  5. Congenital Heart Legislative Conference 2017

    Registration is now open!  The Pediatric Congenital Heart Association, Children’s Heart Foundation, and Adult Congenital Heart Association invite you to attend Congenital Heart Legislative Conference 2017 March 1-2, 2017 Liaison Capitol Hill Hotel, Washington D.C. Your voice matters as we unite to educate our members of Congress about congenital heart disease. Learn about current CHD…

  6. Research Matters: Psychosocial Functioning of Adolescents with D-Transposition of the Great Arteries

    Continuing our theme of Research, PCHA welcomes back pediatric psychologist Dr. Erica Sood. Dr. Sood provides an overview of research studies that highlight the importance of monitoring children and adolescents with CHD for psychosocial issues and that further reveal how parent/caregiver stress can affect the emotional and behavioral functioning of a child with CHD.  …

  7. Research Matters: The Importance of CHD Surveillance

    For the month of October, PCHA will be focusing on the theme of Research. In the first post of our series, Dr. Matt Oster provides an overview of a recent study that estimates the prevalence of CHD across all age groups in the United States and highlights the importance of surveillance in improving outcomes for…

  8. A Timely Reminder from Texas Children’s Hospital

    Dr. Eboni Smith from Texas Children’s writes a timely reminder of monitoring for signs of developmental challenges and seeking out help during this back-to-school season.  School is now in full swing and the change in seasons is just around the corner. The beginning of a new school year is an exciting time for both parents…