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  1. Action Alert – Educate Congress About CHD!

    It’s Time to Educate the New Congress about CHD! A new Congress not only brings new lawmakers to Washington D.C. but a whole host of new staff members, as well.  Many of these folks have only a little knowledge of CHD, at best. With the current conversation about our nation’s healthcare system, it is important…

  2. JJ Merryman

    JJ Merryman was born on November 10, 2015. At four weeks old, he was diagnosed with coarctation of aorta, requiring emergency heart surgery. At 11 months old, he was diagnosed with recurrent coarctation of aorta. His aorta had narrowed again and he had a balloon angioplasty cathaterization. JJ will be followed his whole life by…

  3. Harper Wooton

    Our daughter Harper was born on January 16, 2015. We knew before she entered this world with us that we would be faced with some challenging situations. Harper was diagnosed with HLHS at 25 weeks before birth. We knew she would have to overcome many obstacles, but not once did we lose our faith that…

  4. Callie Morefield

    We heard the words no parent wants to hear at our 20 week appointment, “there’s something wrong with her heart”. After many doctors appointments we found out our sweet baby girl had Truncus Arteriosus. This was not only a severe CHD but a very rare one at that. We did lots of research and educated…

  5. Eli Schurrer

    Our son, Eli was diagnosed pre-natally at the 20 week ultrasound with a congenital heart defect. We were absolutely devastated and terrified at this news, especially when we learned that he would undergo open heart surgery quickly after birth. His surgery, at one week old, went well and he came home in 17 days. At…

  6. Caleb Sams

    After what appeared to be a picture perfect pregnancy, we were so excited to head to the hospital for our first child, Caleb, to be born.  This day, which began with excitement and joy, would turn into a roller coaster of emotions. After hours of labor, it was apparent that Caleb was in trouble. His…

  7. Ruby Schupbach

    At 24 weeks pregnant, we learned that our 4th child had a congenital heart defect – we were diagnosed with Pulmonary Atresia with VSD. We decided to transfer our care to C.S. Mott’s Children’s Hospital after the initial diagnosis, as we are located in Lansing. Four days before we were scheduled to be induced at…

  8. Ava Petz

    This is Ava. After an exhausting pregnancy, we were excited to welcome her on February 17, 2013. The joy was short-lived, as the nurse heard a heart murmur during her exam. My husband and I each held her for a few minutes and then the nurse took her to the nursery to be checked further. She…

  9. Owen

    Owen was born on July 16, 2012, a healthy baby boy. He passed all his newborn tests and we were both sent home with the elation of new parents. After a few weeks, I noticed that nursing was getting quite difficult, as Owen would nurse for only a few minutes, then fall asleep. As soon…

  10. Caleb Dougherty

    We found out that our fourth child was going to be born with a heart defect when we learned that his twin had miscarried. Caleb was diagnosed with Tricuspid Atresia and Double Outlet Right Ventricle that resulted in a hypoplastic right ventricle. Caleb was born at U of M Mott Children’s Hospital and had his…