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  1. Action Alert: FY2018 Appropriations

      Email your Representative, today, and ask her or him to sign the Appropriations letter being circulated by CHD legislative champions Representatives Schiff and Bilirakis in support of congenital heart disease-related public health research and surveillance initiatives at the CDC. There is a lot going on in Washington D.C.  While we haven’t stopped our efforts focusing on getting…

  2. National Reading Month: You’re Here for a Reason

    For the month of March, PCHA will be focusing on the theme of National Reading Month. In the 3rd post of our series, PCHA’s Jessica Chenevert talks with us about one special book. Read on to hear why You’re Here for a Reason holds a special place in her heart. When I bought this children’s…

  3. National Reading Month: A Q&A on The Love of Reading with Members of the CHD Community

    For the month of March, PCHA will be focusing on the theme of National Reading Month. In the 2nd post of our series, PCHA asked members from across the spectrum of our CHD Community to tell us what they love about reading. Sharing with us this week, about what reading has brought to their lives,…

  4. National Reading Month: It’s My Heart Book

    For the month of March, PCHA will be focusing on the theme of National Reading Month. In the first post of our series, the Children’s Heart Foundation shares an overview of the It’s My Heart book, a resource for families affected by CHD. PCHA and the Children’s Heart Foundation are partnering to include the It’s My…

  5. Join fellow advocates in D.C. and email Congress!

    As you read this, more than 180 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2017 Congenital Heart Legislative Conference.  They are asking their lawmakers to support research, data collection and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors for the recently…

  6. Congenital Heart Futures Act of 2017 (S.477/H.R.1222)

    Revised Bill Language: H.R.1222 – Congenital Heart Futures Reauthorization Act of 2017, Engrossed Amendment Senate (12/12/2018)   UPDATE, December 21, 2018: The Congenital Heart Futures Reauthorization Act was signed into law.  We can all celebrate that a federal law was passed that will help shape the future for the CHD Community, across the lifespan, through robust funding…