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  1. Cosponsor the Congenital Heart Futures Act of 2017 (S.477/H.R.1222)

        We urge Congress to cosponsor the Congenital Heart Futures Reauthorization Act (S.477/H.R.1222). To cosponsor this important legislation please contact Max Kanner (max_kanner@durbin.senate.gov) with Senator Durbin’s office or Shayne Woods (Shayne.Woods@mail.house.gov) with Congressman Bilirakis’ office. Congenital heart disease is the most common birth defect and the leading cause of birth defect-related infant mortality. Nearly…

  2. American Stroke Awareness Month – Terese’s Story

    For the month of May, PCHA has been focusing on American Stroke Awareness Month. In the 4th week of our series, Terese Quarino shares her experience with stroke.   I remember the day, like it was yesterday…. The Wednesday before Labor day weekend, I called my cardiologist to say I felt some funny beats in my…

  3. American Stroke Awareness Month – Molly’s Story

     For the month of May, PCHA will be focusing on American Stroke Awareness Month. In the 3rd week of our series, Alison Ogden shares the story of her daughter Molly’s stroke at age sixteen.   Molly awoke for school on November 5, 2012 as if it were any other Monday in her Sophomore year of…

  4. Action Alert – Remind your Senators to fund CDC Efforts

    DEADLINE: Friday May 12 Act Today! Ask your member of Congress to Sign the Durbin-Grassley FY2018 Congenital Heart Disease Appropriations Letter. It might be hard to look beyond the health care issues at hand, but there are other important Congenital Heart Disease issues that need our attention in Washington D.C., as well! Each year, we…

  5. Luke Toth

    In October of 2008, our heart hero, Luke, was born. We were fortunate to know about Luke’s congenital heart defect (CHD)—tetralogy of Fallot—at our 20 week ultrasound. At one week old, Luke had a heart procedure (BT Shunt) and spent his first 23 days of life in the hospital. This was a temporary fix until he…

  6. American Stroke Awareness Month – The Asher James Foundation

    For the month of May, PCHA will be focusing on American Stroke Awareness Month. In the 2nd post of our series, learn about the Asher James Foundation, founded by Jen DeBouver after the loss of her son Asher.   In October 2012 our whole World changed. The outcome of our son’s life was about to…

  7. An Open Letter to Jimmy Kimmel

    As many of you have seen, Jimmy Kimmel made headlines this morning, after his heartfelt monologue last night on Jimmy Kimmel Live. Jimmy shared the story of how his son Billy was recently diagnosed with Tetralogy of Fallot and Pulmonary Atresia and underwent open heart surgery, shortly after birth. The Pediatric Congenital Heart Association would like to take a…

  8. American Stroke Awareness Month – What is Stroke and Its Warning Signs

     For the month of May, PCHA will be focusing on American Stroke Awareness Month. In the 1st post of our series, Sydney Taylor, PCHA Virginia’s ACHD Board Director, shares life-saving information defining stroke and its warning signs.   May is American Stroke Month, and for a good reason. According to the National Stroke Association, a stroke…