search
  1. Mental Health – Beyond Survival, The Struggle with Anxiety and Depression

    PCHA continues its series on Mental Health with a piece by nurse and PCHA -VA Board Member, Sydney Taylor. Here, Sydney discusses contributing factors and prevalence of Anxiety and Depression in patients and parents affected by Congenital Heart Disease.        For the first time ever, there are more adults living with a congenital…

  2. Mental Health – Courtney’s Story – A Mom’s Perspective

    As PCHA continues  our current series, Courtney Kile  shares with us how her experiences as Heart Mom to son Sully impacted her mental health. I still remember the first time it happened. The surgeon had come in to tell us that the open heart surgery performed on my 3-day old son, was an outstanding success. …

  3. Mental Health – Brittany’s Story, Living with PTSD

    An often unspoken topic with members of the CHD community is PTSD. For the first piece in our Mental Health Series, Brittany Foster, born with a VSD as well as other conditions, shares her experience with the illness, and how it has affected her life and her perspective.     “Doesn’t matter how tough we…

  4. Patient Engagement Tools: Comprehensive Single Ventricle Roadmap

    When a family learns their child will be born with a Single Ventricle CHD, they are thrust into a world of uncertainty. It is sure to be a daunting and overwhelming experience. The plan for care of these patients has not typically been clear. As outcomes have improved, providers have been able to imrove their…

  5. A Hero in A Small Package

    The ending of June brings one more Heart Dad story. Jason Ruud shares his story as dad to heart kiddo Breanna   Faith and Miracles: When I was growing up, I always considered my heroes to be professional athletes who made incredible moves on the field or court and made the impossible look easy. Little…

  6. Lucas Iguina

    “There is nothing more powerful than using my story to make a difference. PCHA helped me do this in Washington D.C., including the opportunity to have my name mentioned on the floor of the House of Representatives!”