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  1. Making sense of congenital heart surgery data

    The Pediatric Congenital Heart Association is committed to empowering patients and families. Patients and families deserve essential information to help make important health care decisions. As this data becomes available it can be very hard to understand.  It is our hope that this resource can help.  For a .pdf version of this document, click here….

  2. Happy Birthday PCHA – #ConqueringCHD Week!

    Here are a few ways to celebrate our 4th Birthday with us! Use your Social Media talents as we work to reach 450,000 people and get 15,000 page likes! It’s your week to shine as a PCHA #ConqueringCHD social media ambassador! In February, our education efforts had a total weekly reach of 344,000 people for our…

  3. School Intervention Series: Advocating for a Program

    In her final post of a three-part series, Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin, details how to start advocating for a dedicated school liaison at your cardiac center. If you missed the series, you can find her first post here and Complete Resource Guide here.       Advocating for equal accesses to quality education for children with complex…

  4. School Intervention Series: A Complete Resource Guide

    PCHA welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School.  Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of this post for easy reference.  Going to school for a child with complex medical condition can…

  5. Support PCHA in the Final Hours of Macy’s Shop for a Cause Charity Challenge!

    PCHA is involved in the Macy’s Shop for a Cause Charity Challenge, a friendly fundraising competition raising money for causes like ours. We’ve got just over a few hours to go before our campaign ends. As of this morning we are sitting in 11th place sitting at $13,300 raised. When you add in the generous $3,000 from…

  6. Aron Matthew Northcraft

    Aron’s mother Sara has been an active member of the CHD community, helping to educate people on how to support families after losing a child and advocating at the Legislative Conference in years past. Here she shares his story. Aron Matthew Northcraft was born January 10, 2007 with Hypoplastic Left Heart Syndrome (HLHS). He was…