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  1. Recap – Mental Health

    We often shy away from discussing Mental Health, but in this series, patients share their stories and their struggles. We also hear from a psychotherapist, who has personal experience with CHD.  Brittany’s Story, Living with PTSD Beyond Survival, the Struggle with Anxiety and Depression – by Sydney Taylor Courtney’s Story, A Mom’s Perspective Redefining “Of…

  2. Recap – Back to School

    For tips and resources on how to advocate for your child in school and a Q&A with members of the CHD community on their school experiences, check out the links to the blogs below. Making a Difference – By Kyle Herma A Complete Resource Guide – By Kyle Herma Advocating for a Program – By…

  3. Recap – Heart Dad Series

    Read about the Heart Dad take on caring for children with CHD and their wives’ tributes to them.  Making the (Heart) World a Better Place The Immense Sky: Space to Deal, Space to Feel We Make a Good Team A Little Love Story Hero in a Small Package

  4. Recap – Stroke Awareness

      Hear from patients who have survived and thrived after suffering strokes; learn the warning signs and causes.   Stroke Warning Signs – By Sydney Taylor The Asher James Foundation  Molly’s Story Terese’s Story    

  5. Recap – Donate Life Month

    Read the stories of families affected by organ donation, those who received the gift of life and those who chose to share it.  The Wait – By Bill Coon Becoming a Donor – By Jennifer Weiner  The Call – By Kathleen Sheffer Choosing the Ultimate Gift – By Emily Inman  An Extraordinary Miracle of Science –…

  6. Recap – National Reading Month

    Check out some of our favorite reads in the posts from PCHA’s National Reading Month Series   It’s My Heart Book – By The Children’s Heart Foundation A Q&A on Why We Love to Read , with Members of the CHD Community About “You’re Here for a Reason” – By Jessica Chenevert  

  7. Teen Topics – Advocating for Yourself

    Annaleci was taught at a young age how to speak up for herself. She found, as she grew up, just how important that is , especially when it comes to her healthcare and advocating for her needs.This week, Anna shares her story with us.    My life growing up, from an outsider’s point was hectic,…

  8. Teen Topics – Preparing Your Child for Independence

    Last week, we heard from Abby Hack on heading off to college. This week, we will hear from her mom, Janice. Watching your child leave home for the first time can be worrisome, especially with cardiac issues to consider. Janice shares with us how she has helped prepare Abby to take greater ownership of her…

  9. Teen Topics – Going Off to College

    Going off to college is a major milestone in a young adult’s life. For many, it is the first time living away from home, from their parents, and from everything familiar to them. A chronic illness can complicate the transition. In this week’s blog, Abby Hack shares what it was like for her to gain…

  10. Teen Topics – Medical I.D.’s and Taking Ownership of Your Care

    PCHA begins its Teen Topics Series for the month of October. In this week’s post, American Medical IDs, introduces I.D.’s as one step toward  families helping their teens take ownership of their own care. Read further on the importance of involving teens in self -care and for a special offer .  How Medical IDs Can…