1. Arrhythmias – Tachycardia Explained (Part Two)

    Last week we discussed the issues that can cause the heart to beat too slow. This week, we look at what happens when the heart beats too fast. Carol Raimondi, completes part two of her resource on arrhythmias, this time covering tachycardia.     Tachycardias There are many types of tachycardias, but here we will…

  2. The Biggest Gift

    After  receiving a heart transplant, Megan Horton,  a Texas Children’s staffer shares how she celebrates the biggest gift she’s ever received . Happy Holidays, Everyone!      Twelve years ago, a family lost their daughter. Twelve years ago, a 17-year-old lost her best friend. Twelve years ago, friends, family and loved ones had to say…

  3. Wellness – The Most Wonderful Time Of Year

    The Holiday Season is meant to be filled with family and joy. It can also be a time of great stress, especially for families with chronically ill loved ones. In today’s post, Becky Hunt shares her experience with losing a child to CHD as well as managing her own illness, and explains how to de-stress…

  4. Recap – Teen Topics

    The 2017 Teen Topic Series posts are all here in one place. Take a look back on the important issues discussed!   Medical I.D.’s and Taking Ownership of Your Care PCHA began its Teen Topics Series with a post about employing medical IDs as a useful tool. American Medical I.D.s, introduces IDs as one step…

  5. Arrhythmias – Bradycardia Explained (Part One)

    This week former Cardiac Nurse, Carol Raimondi, provides us with the first of a two-part resource on arrhythmia and the various diagnosis and treatment. Up this week: Bradycardia.         Congenital heart defects are frequently accompanied by issues with the electrical conduction of the heart. These issues can cause a slow heart rate(…

  6. The Promise of Research for CHD, and Our Responsibility to Advocate

    Advancement in standards of care and best practices can only happen with research.  This week, Margaret King discusses the implications increased CHD research has on not only the community but society as a whole, as well as how important it is for each one of us to contact our representatives to increase research funding.   …

  7. Alee Faith

    Alee Faith was born on June 16th, 2016 .After some poor feeding issues and a sweating episode we ended up at UK on June 27th and we were given her diagnosis: Truncus Arteriosis with vsd. We were transferred to Cincinnati Children’s Hospital and Alee had open heart surgery on July 5th, at 19 days old. The surgeons placed her conduit…

  8. Cardiac Devices – The Elephant in the Room

    With each CHD, there is no certain path, no one course looks like the next, and complications vary widely. Though a patient may have a specific structural diagnosis, different arrhythmias may develop over time, however patients and families are not always made aware of this possibility immediately. That’s why the diagnosis of an arrhythmia may…