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  1. Recap – Arrhythmias and Cardiac Devices

    Complications from surgery, scar tissue left behind, and an underlying disease can bring about arrhythmias in CHD patients and lead to need for a cardiac device. Gathered here are the contributions and resources from PCHA’s Arrhythmia Blog Series.    Jarvik: For Smaller Hearts PCHA’s next series introduces the various Cardiac Devices involved in the treatment…

  2. New Diagnosis – Baby Shower

    When a mom -to-be  receives a CHD diagnosis for her baby, questions and uncertainty swirl. Laura Carpenter shares, this week, how her baby’s Truncus Arteriosus diagnosis affected her perspective on baby showers.    I remember reading an advice column many years ago. Someone was seeking guidance about her struggle to attend a friends baby shower…

  3. New Diagnosis – Mary Beth’s Story, Diagnosed in Adulthood

    We continue the New Diagnosis series with Mary Beth Meyers’ story. Diagnosed at the age of 23, Mary Beth shares how she had to put her dreams on hold due to an undetected CHD.        In May of 2012, I was a newly graduated young woman, with hopes and dreams to begin working…

  4. #CHDAware Fundraising Challenge 2018

    Join our #CHDAware 2018 Fundraising Challenge to support  our critical programs that help improve the lives of those living with CHD.  We need YOU to help so we can reach our goal of $20,000. All you need to do is register as a fundraiser on our Challenge Page. While the fundraiser will be open all…

  5. New Diagnosis – One Day At A Time, A Heart Mom’s Story

    As we approach Heart Month PCHA begins its series on New Diagnosis. This week, Heart Mom Alexandra Frost shares with us the story of her daughter Emersynn’s  diagnosis in utero and how she learned to take the news and life with CHD day by day.     It all started when we went for our 12…

  6. Lincoln Clay Shockey

      Our son Lincoln was born on April 26, 2015 after a very eventful pregnancy.  At 24 weeks, we found Lincoln’s CHD, Hypoplastic Left Heart Syndrome, after I developed a placental abruption and a multitude of other complications which put me onto hospital bedrest for the duration of the pregnancy.  He was delivered in Louisville,…

  7. Jeremiah Shanks

    Jeremiah was born with a congenital heart defect. We found out at our 18 wk ultrasound that there was something wrong with his little heart. After multiple ultrasounds, many echos, transfer to the UK team, & then another transfer to Cincinnati, we gave birth to our otherwise healthy baby boy on August 4th. He was born…

  8. David

    David was born on August 2, 2006. He is a twin. At my 18 week ultrasound the tech couldn’t find his aorta and the four chambers of his heart were not the correct size. We were referred to Dr. Goble. As she was doing an ultrasound she kept saying, “I can’t believe they found this”….

  9. Wellness – Balance

    In the latest post in the Wellness Series, Megan Horsley, heart mom and Pediatric Dietitian at Cincinnati Children’s Hospital Medical Center, discusses how to find balance with your nutrition.     Have you ever felt off balance? I am not specifically talking about when you were walking on a balance bean during gym class or gymnastics;…

  10. Wellness – CHD and Exercise

    With the brand new year, many of us are making resolutions to better ourselves and our lives. Exercising more is often at the top of the list! This week, Kathleen Baschen, an exercise physiologist at Ann & Robert  H. Lurie Children’s Hospital of Chicago, shares tips on how patients with CHD can get FITT.   …