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  1. The House of Representatives is officially #CHDWise – IT PASSED!

    Shortly after it’s initial passing into law in 2010, the Pediatric Congenital Heart Association began hosting the Congenital Heart Legislative Conference – in partnership with the Children’s Heart Foundation and The Adult Congenital Heart Association – in efforts to ensure the Congenital Heart Futures Act is renewed in order to meet the needs of the…

  2. New Diagnosis – Fetal Echo

    More often now, than a generation ago, babies born with CHD are being diagnosed prenatally. This week, Dr. Sheetal Patel, from Lurie Children’s Hospital of Chicago and Assistant Professor of Pediatrics, Northwestern University Feinberg School of Medicine, explains the role prenatal echocardiography plays in diagnosing CHD and the benefit of that early diagnosis.       …

  3. Join our D.C Advocates and Participate from Home Today!

    As you read this, nearly 200 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2018 Congenital Heart Legislative Conference. They are asking their lawmakers to support research, data collection, and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors for the recently introduced Congenital Heart…

  4. Zipperstrong Project

    As we continue through heart month, one amazing program, called Zipperstrong, helps honor families affected by CHD and their stories. The work done by photographer SheRae Hunter helps remind us all that even our scars can be beautiful.        “I am the mommy of a child who is different.   All I ever want…

  5. New Diagnosis – Jaclyn’s Story

    This week, PCHA-OH Board Member, Jaclyn Frea shares the story of her miracle baby’s diagnosis with Tetralogy of Fallot. My husband Bryan and I were married on March 5, 2011 and we knew that immediately we wanted to start a family. Little did we know, getting pregnant would be a lot more difficult than we…

  6. Ethan

    Ethan was born July 11, 1998 with a congenital heart defect called VSD. He received his first pacemaker at the age of 4, another 2 at the age of 9 and will have his 4th pacemaker replacement surgery in April. He is nothing short of amazing. We are so thankful for the strength and courage…

  7. Recap – Wellness

    When living with chronic illness or caring for a chronically Ill child, it’s important to maintain a healthy lifestyle. PCHA’s Wellness Blog Series contributors offered tips on how to do it! The Most Wonderful Time Of Year The Holiday Season is meant to be filled with family and joy. It can also be a time…

  8. Bryana Kennedy Walker

    At 20 weeks in utero, my baby was diagnosed with an Interrupted Aortic Arch, VSD and Aortic Stenosis. Bryana Kennedy Walker was born September 25, 2016 at Advocate Christ Hospital under the care of Dr. Michel Ilbalwi, Bryana underwent her first open heart surgery at 10 days old on October 5, 2016 to repair her…

  9. New Diagnosis – Prenatal Conquering CHD Kits

    This week, our State Chapter Coordinator, Melanie Toth, shares her experience with us as  a new mom finding out her son would be born with a congenital heart defect and how PCHA helps to make sure other families don’t have to go through what Melanie’s did alone.   Like many heart families, when diagnosed with their…

  10. #CHDAware – Heart Month 2018

    CHD Awareness Week has come to a close but there are still a few key ways to help us raise awareness through heart month and all year long! Participate in our Social Media campaign!  Use your social media talents to shine and join the #CHDAware social media storm February 7-14, the entire community comes together…