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  1. Mother’s Day – Love, Brett

    With Mother’s Day on the horizon, PCHA begins a series honoring Heart Moms. This week, Brett Nishibayashi shares a letter to his wife about their journey becoming CHD parents and his admiration for her love and strength. I remember when you first found out you were going to be a mother. The disbelief and overwhelming excitement…

  2. Beyond the Heart – Nauman’s Story

    Adult patient and medical student, Nauman Shahid, shares what he learned about the way different body systems interact with one another through Medical School and personal experience. Here, he shares the complications that developed with his lungs as a result of his Congenital Heart Disease.

  3. Recap – New Diagnosis

    Becoming part of the CHD community can be a shocking and overwhelming experience. Our series on New Diagnosis offers new family a view into the fist steps of others who have come before them, in hopes they may ease the the journey if only just a bit.   New Diagnosis – Prenatal Conquering CHD Kits…

  4. Pre-Existing Condition by Dr. Stephen Caldwell

    After the diagnosis of his son, Dr. Stephen Caldwell, used music to chart his family’s experience with CHD. Watch below, and find the lyrics to “Pre-Existing Condition” and Dr. Caldwell’s thoughts on his work.    University of Arkansas Schola Cantorum Dr. Stephen Caldwell, Director Pre-Existing Condition*                                                Stephen Caldwell (2018)              …

  5. Beyond the Heart – Marissa’s Story

    There is still much unknown about adult Congenital Heart Disease Patients and the long term effects of their treatment in childhood. This week, Marissa, a single ventricle patient about to complete her nursing degree, shares her story of an unexpected complication, which almost cost her future in nursing.  I call myself a “heart patient”, but…

  6. Beyond the Heart – Rebeka’s Story

    CHD can affect so much more than the heart, yet physicians unfamiliar with Congenital Heart Disease may have trouble seeing the big picture. In this week’s post Rebeka Acosta, PCHA Steering Committee member and Mom to two heart warriors, shares the struggle of coordinating care outside of cardiology. In the last few decades, science and…

  7. Beyond the Heart – Anna’s Story

    The effects of Congenital Heart Disease aren’t limited to the heart. Patients will often experience complications with other body systems. This week Anna Archer shares her how her late CHD diagnosis caused a brain abscess. Growing up and Diagnosis I was your average, ordinary, little girl for the first decade of my life and lived…