1. The Ways we Pay for CHD

    The theme for August is finances, and how the families affected by CHD pay for all the healthcare that goes into a CHD patient. This month we will be sharing stories and advice from people of all walks of life who come with many different perspectives. This week we will hear from a patient who…

  2. ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help!

    ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help! The Congenital Heart Futures Reauthorization Act passed the House, this past February and is now making its way through the legislative process in the Senate. We are thrilled to report that this Wednesday, July 25, the Senate Health, Education, Labor…

  3. 5 Ways Heart Families Beat the Summer Heat

    The summertime sunshine can be a welcome treat after a long winter, but it can also be dangerous. Many people with complex CHD have difficulty tolerating the summer heat. PCHA recently asked the CHD Community, families, and patients to share what they do to beat the heat. This is what they had to say!  …

  4. A 2nd Opinion: Finding the Right Care

    Although we know it’s not Thursday, this week we’re doing a throwback! We are always working on improving the transparency between patients, and the doctors. In our continuing conversation of transparency, please read this family’s story in navigating the difficulties of finding the right care for  their little boy, John… Spoiler alert, there’s a happy…

  5. Taking a Break for Fun: Summer Possibilities with Margaret King

    This week we are continuing with the theme of summer fun! Today we’ll hear from Margaret King, a Heart Mom, who spends her summer hanging out with her fun-loving son.   In the CHD life, sometimes it’s hard to get a break. While summer brings a brief reprieve from school expectations and IEP goals, we…

  6. Summer Fun! – Laura’s Adventures with CHD at Camp Odayin

    For the month of July, we are bringing you stories of how CHD families enjoy the summer, along with tips and tricks on how CHD patients can beat the heat. To kick us off for the month we have Laura Hoagland, an adult CHD patient and avid adventurer. Laura shares her experience with Camp Odayin,…