1. September Recap- CHD and the Sibling Experience

    This September, we explored the experiences our siblings have in this CHD journey. Through thick and thin, our siblings are ultimately our lifelong best friends, and congenital heart disease often has a substantial impact on them. The experience of the CHD journey shapes the relationships we have with our siblings, and this series seeks to…

  2. The Joy Siblings

    This week we are continuing to explore how CHD affects our siblings. Johnathan shares how his sister Abbigail, has affected his perspective on life, and the lessons he has learned from her.    My sister Abbigail was born with heart defects in 2008 and passed away at two months old.  At first it didn’t affect…

  3. Lauren and Korrin

    This 3rd week of September, we share another special sibling story. Today we hear from Korrin Wells, a sibling who just happens to be that of our Blog Coordinator! Korrin discusses how CHD has affected her, and the lessons it has to offer.  As a child growing up with an older sister with CHD, one of…

  4. August Recap- Finances and CHD

    CHD take such a huge toll on patients and their families, mentally, physically, and financially. Finances can be such a daunting conversation when it comes to CHD. This series in August attempts to make that conversation a little less scary, so that families may feel like they have some tools to conquer the financial aspect…

  5. July Recap- Summer Fun!

    The summer season can be a ton of fun, a great time to get outside, or go on vacation with the family. But it can also be overwhelmingly hot when engaged in outdoor activities. In the month of July, we learned how CHD patients, and parents, like to beat the heat in those very hot…

  6. The Weiner Siblings

    This week, we continue to hear from our siblings and how growing up with a CHD warrior has affected their lives. Today,  we share an interview given by Jeff and Jessica Weiner, siblings of Jennifer Weiner, our former blog coordinator and current Lead ACHD Volunteer.  Their thoughts come to you through a podcast hosted by…

  7. Amy and Gretta

    On this holiday weekend, we are beginning our series on Siblings. We will be dedicating the September theme to their stories, their journey with CHD . Our siblings voices are not often heard through the the chaos that can come with appointments and procedures, but CHD takes its toll on them as well.  This week,…

  8. Social Security Disability Benefits – Adults

    Qualifying for Social Security Disability Benefits as an Adult with CHD   Tens of thousands of adults are thriving with congenital heart defects. While many are able to live full lives, it’s possible that at some point your heart function will decrease and you’re unable to maintain employment. If you’re no longer able to work…