1. Jaguars’ Josh Lambo to Wear Cleats for Heart Defects!

    My Cause My Cleats 2018     Jaguars’ Josh Lambo to Wear Cleats for Heart Defects! Jacksonville Jaguars Kicker and Pro Bowl contender, Josh Lambo, brings much needed attention to congenital heart disease with his My Cause My Cleats charity selection for 2018. This NFL tradition will place CHD in the national spotlight, this football…

  2. #GivingTuesday: Give Knowledge. Give a Voice. Give Hope.

    Here are a few key ways to make an impact on #GivingTuesday:   Donate or Create a #GIVINGTUESDAY Facebook Fundraiser Make every dollar matter when you give to PCHA by helping us put essential resources into the hands of hospitalized patients and families. Whether two days old, or twenty years young, having knowledge, a voice…

  3. Always Enough – Rebeka Acosta

    In our last post on the series of gratitude, we hear from Rebeka Acosta. Rebeka recognizes how there are so many people to be grateful for, and how those people form a community and help you through the frustrations of life.  Gratitude turns what we have into enough. -Unknown At the end of any given…

  4. Angels in Scrubs

    In times of hardships, it can often be difficult to maintain gratitude. This week, Heather Speakman shares with PCHA how hardships can often teach us the most about gratitude. It’s the Eve of Thanksgiving and I can’t help but feel overwhelming gratitude to the team of people that take care of our sweet Madison. I…

  5. Sydney Kim

    Sydney Kim

    Sydney was born in May 2011 and as with most first-time parents, we were both elated and completely terrified. She was delivered via C-section, so we only had a few moments with her before she was whisked away to the nursery. That turned out to be the one and only time we were able to…

  6. Over the Counter Medications

    As patients with pre-existing conditions, who may be on a list of prescription medications, it’s important to know which over-the-counter (OTC) medications are safe for CHD patients  Recently at an Adult Congenital Heart Disease Conference, Justina Damiani, Inpatient Cardiology Pharmacist at Lurie Children’s, shared her recommendations for OTC meds, for those everyday illnesses or aches and…

  7. The Gift of Life – Sara Engstrom

    In the spirit of Thanksgiving, we are continuing our series on gratitude. This week we hear from Sara, a CHD warrior who shares how gratitude has played a role in her life.  At six months old, I was diagnosed with Shone’s complex, a myriad of heart defects that impacts each patient differently. My defects include…

  8. Delbert Collins

    Our handsome baby boy Delbert was born at the Children’s Hospital Colorado in December 2017. Del was originally diagnosed with aortic stenosis but after he was born doctors were able to determine it was actually hypoplastic left heart syndrome (HLHS). He spent his whole life in the hospital, and during this time he went through 11 surgical…

  9. Patrick William Walker White

    On September 20, 2018, at our twenty week ultrasound, we found out that our beautiful baby would not only be a bouncing baby boy, but also a heart warrior. It took two days and multiple scans to finally be diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Basically he would be born with half a heart.The…

  10. October Recap – Pregnancy and CHD

    Over the month of October, we discussed the many aspects of pregnancy, from many different perspectives.    The Grenier Family   A Mother’s Love Welcoming Oliver Options- With Dr. Gurvitz 30 Days of A Grieving Mother    

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