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  1. The Unexpected Defibrillator

    Growing up with CHD and constantly facing your own mortality is a very scary reality. For many warriors, anxiety can arise from the myriad of worries. Today we’ll hear from Danielle Sikorski, a heart warrior who shares her personal experience and how she tries to mitigate some of the stresses her daily life. Please note that…

  2. Action Alert: Tell your Senator to Sign-On

    In December 2018, the Congenital Heart Futures Reauthorization Act became law.  The law authorizes, or allows for, $10 million in research, data collection, and awareness activities at the CDC over the next 5 years.  This is 2.5 times the current funding of $4 million. Therefore we need to strongly advocate for full funding of the $10…

  3. Head and Heart with Dr. Creel

    For the month of April, we are exploring mental health, and what mental health means for a CHD family.Today we’ll hear from Dr. Creel, a Certified Grief Recovery Specialist, as she shares her experience with CHD families.   Fifteen years ago, when I first began my work in the field of working with heart patients, both…

  4. Grace

    Grace was born on March 7, 2017. At birth, to her parents heartbreak, she was diagnosed with complete atrioventricular canal defect (AVSD), as well as trisomy 21. She had open heart surgery on August 7, 2017 at just 5 months old. The first year of her life was hard on her family, especially the first…

  5. March Recap – Taboo Topics

    Hi PCHA-ers! Here’s a little recap on our “taboo” series this past month.  Taking Back Some Control CHD and the Taboo Q&A: Your Questions Answered “Taboo” ACHD Activities Teen Topics – The Top 10 Things to Remember