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PCHA is Conquering CHD through education, support, research and awareness. But we are unique in our approach, encompassing the lifespan, encouraging transparency, and meeting families where they are. See just What Makes Us Different.

Click here for a printable .pdf version of the What Makes Us Different graphic.

 

 

We are Congenital Heart Disease

  • Our organization is made up entirely of CHD patients, families, and medical experts
  • We have strong relationships with more than 50% of the pediatric cardiac centers across the country
  • We reach millions of people every month on our rapidly growing social media platforms
  • Our programs and activities encompass the lifespan

We are Conquering CHD Every Day

  • Changing the conversation around Transparency and Public Reporting of Hospital Outcomes
  • Uniting the community by holding patient-driven, multi-disciplinary stakeholder meetings
  • Providing current and reliable resources for CHD patients and families of all ages through our website, including our Guided Questions Tool and Patient Portal
  • Reaching families where they are through strong grassroots programming, with 10,000 volunteer hours and our growing state chapter program
  • Succeeding in challenging Congress, including advocating for $50M in CHD research and data collection at the Centers for Disease Control and Prevention (CDC)
  • Contributing to national policy, giving a voice to patients and families, by participating as patient representatives on many national committees and initiatives

Give Knowledge. Give a Voice. Give Hope.

Join us today.