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  1. Action Alert: Tell your Senator to Sign-On

    In December 2018, the Congenital Heart Futures Reauthorization Act became law.  The law authorizes, or allows for, $10 million in research, data collection, and awareness activities at the CDC over the next 5 years.  This is 2.5 times the current funding of $4 million. Therefore we need to strongly advocate for full funding of the $10…

  2. Action Alert: Tell your Representative to Sign-On

    In December 2018, the Congenital Heart Futures Reauthorization Act became law.  The law authorizes, or allows for, $10 million in research, data collection, and awareness activities at the CDC over the next 5 years.  This is 2.5 times the current funding of $4 million. Therefore we need to strongly advocate for full funding of the $10…

  3. 2019 CHD Awareness Fundraising Challenge

      Help us raise awareness and support patients and families all while earning awesome PCHA swag!! Our Goal: $50,000 Yep, it’s double our original goal! You guys are amazing! It is so easy to join the campaign Click here to create a Facebook fundraiser, then: Extend the end date to 2/28 to get in on all…

  4. Inside Out

    Our last August post is a throwback! Today’s guest blog comes from Stephanie, who shares how her priorities have changed, since her daughter, Maggie, was born with a heart defect. This was originally posted in May of 2014.    I used to really care about elections and politics.  As a political fundraiser, I took it…

  5. CHD365 – Recurring Giving Program

    Welcome to CHD365!                   CHD365 is our recurring giving program.  Your contribution through this program helps us to give knowledge, a voice and hope to hundreds of thousands of people impacted by congenital heart disease.   WHY GIVE A RECURRING DONATION? Recurring donation benefits both you and…

  6. A 2nd Opinion: Finding the Right Care

    Although we know it’s not Thursday, this week we’re doing a throwback! We are always working on improving the transparency between patients, and the doctors. In our continuing conversation of transparency, please read this family’s story in navigating the difficulties of finding the right care for  their little boy, John… Spoiler alert, there’s a happy…

  7. Ethan

    Ethan was born July 11, 1998 with a congenital heart defect called VSD. He received his first pacemaker at the age of 4, another 2 at the age of 9 and will have his 4th pacemaker replacement surgery in April. He is nothing short of amazing. We are so thankful for the strength and courage…

  8. Bryana Kennedy Walker

    At 20 weeks in utero, my baby was diagnosed with an Interrupted Aortic Arch, VSD and Aortic Stenosis. Bryana Kennedy Walker was born September 25, 2016 at Advocate Christ Hospital under the care of Dr. Michel Ilbalwi, Bryana underwent her first open heart surgery at 10 days old on October 5, 2016 to repair her…

  9. David

    David was born on August 2, 2006. He is a twin. At my 18 week ultrasound the tech couldn’t find his aorta and the four chambers of his heart were not the correct size. We were referred to Dr. Goble. As she was doing an ultrasound she kept saying, “I can’t believe they found this”….

  10. Making sense of congenital heart surgery data

    The Pediatric Congenital Heart Association is committed to empowering patients and families. Patients and families deserve essential information to help make important health care decisions. As this data becomes available it can be very hard to understand.  It is our hope that this resource can help.  For a .pdf version of this document, click here….

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