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  1. Response to 2019 U.S. News and World Report Congenital Cardiac Center Rankings

    PCHA would like to express our concerns over the recently published U.S. News and World Report U.S. News Rankings. We are encouraging patients and families to use caution when utilizing this tool when making important treatment decisions. Response to 2019 US News and World Report Pediatric Congenital Cardiac Center Rankings: Families deserve transparent information that…

  2. A New Plan

    Finding out your child will be born with a heart defect may cause some of the plans you have for them to disappear, it may cause you to question whether you can be the parent to them that you hoped. Read how dad, Matt, learned to adjust his dreams for his son and encourage him to do HIS best.

  3. All Life’s Moments Are Brush Strokes

    All Life’s Moments Are Brush Strokes

    Like Monet’s San Giorgio Maggiore at Dusk, our lives are full of small strokes of color that require us to take a step back to see the bigger picture. Heart Dad, Chris Perez, shares how he’s learned to view his family’s journey with CHD this way.

  4. To My Mom…

    In this open letter, one HLHS warrior shares what he loves most about his mom.

  5. Mother’s Day Q&A

    In this week’s blog, amazing heart moms, warriors, and 2 junior advocates talk motherhood and what they love most about their moms in this mother’s day Q&A.

  6. Grace

    Grace was born on March 7, 2017. At birth, to her parents heartbreak, she was diagnosed with complete atrioventricular canal defect (AVSD), as well as trisomy 21. She had open heart surgery on August 7, 2017 at just 5 months old. The first year of her life was hard on her family, especially the first…

  7. Taosies Carpenter

    Taosies was born in January 2010 with Critical Congenital Heart Disease. His anatomical diagnosis is Double Inlet Left Ventricle (DILV) with Transposition of the Great Arteries (TGA), also known as single ventricle anatomy or “half a heart.” There is no repair available for his anatomy, only palliative surgeries to make the most of what his…

  8. Holden Joseph Flynn

    It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber…

  9. Carter Fidel Williams

    “When we first learned of our son’s congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for PCHA, the information and support we received was invaluable as it properly prepared us for this journey.” – Shuntae Williams

  10. Trinity Higgins

    Trinity Higgins

    “PCHA means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – Trinity

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