1. The Unexpected Defibrillator

    Growing up with CHD and constantly facing your own mortality is a very scary reality. For many warriors, anxiety can arise from the myriad of worries. Today we’ll hear from Danielle Sikorski, a heart warrior who shares her personal experience and how she tries to mitigate some of the stresses her daily life. Please note that…

  2. Head and Heart with Dr. Creel

    For the month of April, we are exploring mental health, and what mental health means for a CHD family.Today we’ll hear from Dr. Creel, a Certified Grief Recovery Specialist, as she shares her experience with CHD families.   Fifteen years ago, when I first began my work in the field of working with heart patients, both…

  3. March Recap – Taboo Topics

    Hi PCHA-ers! Here’s a little recap on our “taboo” series this past month.  Taking Back Some Control CHD and the Taboo Q&A: Your Questions Answered “Taboo” ACHD Activities Teen Topics – The Top 10 Things to Remember

  4. “Taboo” ACHD Activities

    **Disclaimer: ADULT CONTENT** Today’s post is on a subject that people with CHD don’t always discuss, but it is a very important topic nonetheless: sex. Below is one woman’s account of what it’s like to be with her husband and have CHD. Due to the sensitive nature of this topic our blogger has asked to…

  5. Taking Back Some Control

    For the month of March we will be discussing the various “taboo” subjects that come up in thinking about life with CHD. This week we will hear from Jennifer, a CHD warrior, who talks about how she took back some control by choosing some of her scars. I was trying on dresses for my best…

  6. Somewhere to Turn

    Today, we will hear from Rita Higgins, a heart mom, who shares her story and recognizes the role that the PCHA plays in a heart family’s life. It was the first time that I saw my husband really cry. I can still hear his voice crackle with joy and love. I can still smell her…

  7. Your Health vs. Your Career

    This week we hear from Samantha Michaud, a CHD warrior, who speaks about how CHD has affected her career opportunities in life. And how your health ultimately has to come before your career.  I was born a healthy (or so they thought) baby. I spent the first 2 months of my life slowly dying and…

  8. Hidden Scars

    At the start of the new year we often reflect on the year that has just passed, and for most of us, work and/or school is a large part of that reflection. We are kicking off the year with a series on how CHD affects patients, and families at school and work.  This post is…

  9. The Gifts that Life Brings

    Hello PCHA! I hope everyone is enjoying the holiday season. In the spirit of giving, here are a few short anecdotes on the most memorable gifts that life has brought us. Happy Holidays!!!  The best Christmas present I received in recent years was family abandoning our usual Christmas traditions and coming to visit me after…

  10. November Recap – Grateful Hearts

    Throughout the month of November, we took a look at everything we have to be grateful for, through the hard times and the good. And we discovered that we have so much to be grateful for in this crazy thing called life!  I just want to make a quick note to the PCHA community, next…

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