Blog

  1. CHD and the Taboo Q&A: Your Questions Answered

      Today we revisit a couple of Q&A videos that were originally posted in October of 2017. The first video is an interview with Dr. Madsen, on alcohol and drugs. And the second video is an interview with Dr. Gurvitz on college, tattoos, and contraception.  Dr. Nicolas Madsen – Activity, Drugs & Alcohol, Related Conditions,…

  2. Taking Back Some Control

    For the month of March we will be discussing the various “taboo” subjects that come up in thinking about life with CHD. This week we will hear from Jennifer, a CHD warrior, who talks about how she took back some control by choosing some of her scars. I was trying on dresses for my best…

  3. Holden Joseph Flynn

    It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber…

  4. Carter Fidel Williams

    “When we first learned of our son’s congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for PCHA, the information and support we received was invaluable as it properly prepared us for this journey.” – Shuntae Williams

  5. Trinity Higgins

    Trinity Higgins

    “PCHA means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – Trinity

  6. Joshua Morgan

    Joshua was born, at 36 weeks and 4 days, on November 25, 2017, at 7:55pm. He was delivered early due to his dropping heart rate during my routine check ups.  Once Joshua was here, he was 3 pounds and 6.1 oz, and went straight to the Edward NICU. While he was there, it was discovered that he…

  7. PCHA: At the Heart with Melanie

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Melanie Toth, our State Chapter Coordinator.  …

  8. Somewhere to Turn

    Today, we will hear from Rita Higgins, a heart mom, who shares her story and recognizes the role that the PCHA plays in a heart family’s life. It was the first time that I saw my husband really cry. I can still hear his voice crackle with joy and love. I can still smell her…

  9. PCHA: At the Heart with Jess

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Jessica Chenevert, our Marketing Coordinator.    …

  10. PCHA: At the Heart with David

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with David Kasnic, our Executive Director and Co-founder…