Blog

  1. PCHA: At the Heart with Amy

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Amy Basken, our Director of Programs and…

  2. Eva Burt Edinger

    Eva Burt Edinger

    “My CHD went undetected for the first year and a half of my life. After being diagnosed with an Atrial Septal Defect, I underwent open heart surgery, spent several weeks in intensive care, and was not expected to live. Now, as an adult, I have no physical restrictions and I live life to the fullest!…

  3. 2019 CHD Awareness Fundraising Challenge

      Help us raise awareness and support patients and families all while earning awesome PCHA swag!! Our Goal: $50,000 Yep, it’s double our original goal! You guys are amazing! It is so easy to join the campaign Click here to create a Facebook fundraiser, then: Extend the end date to 2/28 to get in on all…

  4. We are #CHDAware – Heart Month 2019

    Heart Month has arrived! Here are a few key ways to help us raise awareness throughout heart month and all year long! Participate in our Social Media campaign!  Use your social media talents to shine and join the #CHDAware social media storm February 7-14, the entire community comes together to help others understand how common…

  5. School Intervention Series: Making A Difference

    In the last week in our series on how CHD affects us at school and work, we hear from Kyle Herma, a School Intervention Specialist at Children’s Hospital of Wisconsin. Although this blog was originally posted in the summer of 2017, these tips, tricks, and recommendations for navigating a school’s system as a person who…

  6. Back to School Q&A Panel

    This week, we are continuing to learn about how CHD affects people in their work, or at school. This is an interview that was conducted back in August 2017, but is still relevant to our topic today.    Congratulations on the start of a new school year! Please introduce yourself. What grade will you or…

  7. Sai Shah

    Sai’s journey started off with a lot of heartache, stress & worry but his life continues forward with a lot of hope, love, laughter & amazement.

  8. Your Health vs. Your Career

    This week we hear from Samantha Michaud, a CHD warrior, who speaks about how CHD has affected her career opportunities in life. And how your health ultimately has to come before your career.  I was born a healthy (or so they thought) baby. I spent the first 2 months of my life slowly dying and…

  9. Hidden Scars

    At the start of the new year we often reflect on the year that has just passed, and for most of us, work and/or school is a large part of that reflection. We are kicking off the year with a series on how CHD affects patients, and families at school and work.  This post is…

  10. The Gifts that Life Brings

    Hello PCHA! I hope everyone is enjoying the holiday season. In the spirit of giving, here are a few short anecdotes on the most memorable gifts that life has brought us. Happy Holidays!!!  The best Christmas present I received in recent years was family abandoning our usual Christmas traditions and coming to visit me after…