Blog

  1. Help Monitor and Manage CHD

    The Pediatric Congenital Heart Association is pleased to support the efforts of the American College of Cardiology to bring you this opportunity: Whether you are a parent caring for a child with congenital heart disease, or an adult managing your own care, NoMoreClipboard personal health records (PHRs) are a secure, online solution for tracking and…

  2. Give From Your Heart

    It’s February and most of us are thinking about hearts. Unfortunately, not enough folks are thinking about congenital heart defects. PCHA has been hard at work to change that. In just a few short weeks we will be co-hosting the Congenital Heart Legislative Conference in Washington D.C., where more than 100 advocates will visit their lawmakers and…

  3. Collaboration for Change

    The American College of Cardiology recently hosted a Summit for providers in leadership positions to share information to improve their practice. PCHA was privileged to join Sisters By Heart in the opportunity to help educate these same amazing providers about building stronger relationships with their patients and parents through transparency and empathy.  We experienced an incredibly…

  4. Medical Advisory Board

    Through Collaboration – we will Conquer CHD. We are thrilled that we have succeeded in bringing together some of the greatest medical professionals in the field to serve on our medical advisory board.  These dedicated folks meet monthly, providing insight, direction and expertise to support the programming of PCHA.  We are so grateful!!   Brad Marino, MD,…

  5. January is Birth Defects Prevention Month

    Birth defects are common, costly and critical. Every 4½ minutes, a baby is born with a major birth defect.  Professionals, community groups and the public can act to reduce the risk of certain birth defects, detect those that occur as soon as possible and prevent secondary complications. Heart defects are the most common birth defect…

  6. Advocacy Success – Increased CHD Funding!

    Your efforts are working!   Congress is working hard to wrap things up before the end of the year. We are thrilled to report that the anticipated budget includes an increase of $1.1 million from $2.9 million to $4 million in 2015 to fund public health research and data collection through the Centers for Disease Control…

  7. Advocacy Success – Newborn Screening

    PCHA has been supporting the efforts of the March of Dimes to ensure passage of the Newborn Screening Saves Lives Act.  We have reached out to you in the past to contact your legislators about this key support for screening including CCHD screening.  We wanted to you with an exciting update!! From our Friends at…

  8. #GivingTuesday

    Click here to donate, today! Give Time. Give Money. Give Hope. Give Time: Join our 1 Voice / 40,000 Strong Campaign Give Money: Click here to donate, today! PCHA works hard to empower patients. Your support brings the patient voice to Washington D.C. through our upcoming Legislative Conference and ongoing advocacy activities as we work…

  9. Walking to Washington

    Miles Walked: 610/860   Donations Earned: $500.00 Join me as I ‘walk the walk’ in preparation to ‘talk the talk.’  I am walking from the Pediatric Congenital Heart Association National Office in Madison, WI ‘arriving’ in Washington D.C. just in time for the Congenital Heart Legislative Conference February 25-26, 2015. Follow my progress here. Just a few weeks left, a…

  10. In The Thick Of It

    I’m having one of those days. All I needed to do was reheat a bowl of soup for lunch.  We have been without a microwave for about a month, now, so heating anything is not quite as simple as it could be.  I dumped the leftovers into the small sauce pan, turned the burner on…