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  1. Take Action to support Newborn Screening

            PCHA supports the screening of newborns for critical congenital heart defects. This legislation indirectly supports CCHD screening oversight efforts.   From our friends at the March of Dimes: We’re at a critical point where YOUR voice can make a real difference! The House passed the Newborn Screening Saves Lives Reauthorization Act (H.R….

  2. What’s a Birthday without Party Favors?

    And the winner is: Diane Kowalik   Thank you to all those who entered.  Our contest is now over.  A winner was picked at random from qualified entries using Random.org   As we celebrate our 1st Birthday, PCHA is giving away a fun assortment of Birthday Party Favors including: Happy Birthday Hat Happy Birthday Sunglasses Birthday…

  3. Save the Date – Legislative Conference 2015

    PCHA is proud to bring you: Congenital Heart Legislative Conference 2015 February 25-26, 2015 Hyatt Regency Hotel Washington D.C. We are looking forward to collaborating with other congenital heart organizations to provide you with: Up-to-date policy information and how it impacts children and adults with heart defects Leadership training to develop skills needed to share…

  4. Birthdays – Reflections and Celebrations

    My sister, Kristin, was born in January 1980 with TOF.  Her complete repair, at Boston Children’s, was one of the first in the country.  I know this because Wikipedia states that the complete repairs began in 1981 and I know my sister’s surgery happened in late 1980.* I never thought about this until my own…

  5. Your Donation = The Perfect Gift!

    Help us Celebrate our Birthday! Sometimes it is really hard to pick out the perfect present.  That is why gift cards have become so popular. Since it is our birthday, we wanted to make gift giving as easy as possible.  In fact your gift does more than simply make us smile: Your gift supports activities…

  6. Celebrating our 1st Birthday!

    In the congenital heart disease community, we don’t take birthdays for granted. Join us as we celebrate PCHA’s 1st Birthday! Learn more about how you can get involved throughout the month of August: Give a gift! Tearing open a birthday present is fun.  Giving one brings great joy, too!  Your monetary gift, in celebration of our birthday,…

  7. Birthday Badges

    If you would like to share the birthday spirit – consider using our birthday badge!! For other ways to get involved check this out!

  8. Participants Needed: Preparing for your doctor’s appointment

    The Pediatric Congenital Heart Association is collaborating with an IT developer working on patient empowerment through different internet applications. We are currently seeking 10 parents interested in helping us try something new to help parents and caregivers prepare for upcoming pediatrician or cardiology visits. Interested people must: Have at least minimal comfort level with social networking,…

  9. We are here… CHD Support

    PCHA recently had the privilege of attending the Mended Little Hearts Leadership Training Dinner. The following message was read by National Program Director Jodi Lemacks: Why Mended Little Hearts Is Here We are here because after a diagnosis, in your darkest hours, when you have pain in the pit of your stomach and you feel like…

  10. Hospital Costs and Resource Use for Children and Adolescents with Congenital Heart Defects

       In a recent study titled ‘Pediatric inpatient hospital resource use for congenital heart defects,’ published in Birth Defects Research Part A, CDC researchers found that in 2009, hospitalized U.S. children and adolescents who had a congenital heart defect had more expensive hospital stays than those who were hospitalized without a congenital heart defect. The most expensive hospital…