Blog

  1. Artyom Pyatin

    Artyom was born in April 2009 with Congenital Heart Disease. Anatomically speaking, he had a moderate Atrial Septal Defect (ASD) but remained largely asymptomatic. At the time his biggest hurdle was undiagnosed complex airway disease. Congenital Cardiologists agreed the airway issues should be addressed before attempting any repair of his ASD. For several years, Artyom’s…

  2. November Recap – Grateful Hearts

    Throughout the month of November, we took a look at everything we have to be grateful for, through the hard times and the good. And we discovered that we have so much to be grateful for in this crazy thing called life!  I just want to make a quick note to the PCHA community, next…

  3. Barrett Lloyd

    Barrett Lloyd

    Barrett Lloyd Chenevert was born just hours after his due date in July in 2014 and his parents had no idea that anything was out of the ordinary. Their pregnancy was fairly typical with two normal ultrasounds and no other significant issues. After a long and exhaustive labor that started with a two-hour car ride…

  4. Jaguars’ Josh Lambo to Wear Cleats for Heart Defects!

    My Cause My Cleats 2018     Jaguars’ Josh Lambo to Wear Cleats for Heart Defects! Jacksonville Jaguars Kicker and Pro Bowl contender, Josh Lambo, brings much needed attention to congenital heart disease with his My Cause My Cleats charity selection for 2018. This NFL tradition will place CHD in the national spotlight, this football…

  5. #GivingTuesday: Give Knowledge. Give a Voice. Give Hope.

    Here are a few key ways to make an impact on #GivingTuesday:   Donate or Create a #GIVINGTUESDAY Facebook Fundraiser Make every dollar matter when you give to PCHA by helping us put essential resources into the hands of hospitalized patients and families. Whether two days old, or twenty years young, having knowledge, a voice…

  6. Always Enough – Rebeka Acosta

    In our last post on the series of gratitude, we hear from Rebeka Acosta. Rebeka recognizes how there are so many people to be grateful for, and how those people form a community and help you through the frustrations of life.  Gratitude turns what we have into enough. -Unknown At the end of any given…

  7. Angels in Scrubs

    In times of hardships, it can often be difficult to maintain gratitude. This week, Heather Speakman shares with PCHA how hardships can often teach us the most about gratitude. It’s the Eve of Thanksgiving and I can’t help but feel overwhelming gratitude to the team of people that take care of our sweet Madison. I…

  8. Sydney Kim

    Sydney Kim

    Sydney was born in May 2011 and as with most first-time parents, we were both elated and completely terrified. She was delivered via C-section, so we only had a few moments with her before she was whisked away to the nursery. That turned out to be the one and only time we were able to…

  9. Over the Counter Medications

    As patients with pre-existing conditions, who may be on a list of prescription medications, it’s important to know which over-the-counter (OTC) medications are safe for CHD patients  Recently at an Adult Congenital Heart Disease Conference, Justina Damiani, Inpatient Cardiology Pharmacist at Lurie Children’s, shared her recommendations for OTC meds, for those everyday illnesses or aches and…

  10. The Gift of Life – Sara Engstrom

    In the spirit of Thanksgiving, we are continuing our series on gratitude. This week we hear from Sara, a CHD warrior who shares how gratitude has played a role in her life.  At six months old, I was diagnosed with Shone’s complex, a myriad of heart defects that impacts each patient differently. My defects include…