Blog

  1. Delbert Collins

    Our handsome baby boy Delbert was born at the Children’s Hospital Colorado in December 2017. Del was originally diagnosed with aortic stenosis but after he was born doctors were able to determine it was actually hypoplastic left heart syndrome (HLHS). He spent his whole life in the hospital, and during this time he went through 11 surgical…

  2. Patrick William Walker White

    On September 20, 2018, at our twenty week ultrasound, we found out that our beautiful baby would not only be a bouncing baby boy, but also a heart warrior. It took two days and multiple scans to finally be diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Basically he would be born with half a heart.The…

  3. October Recap – Pregnancy and CHD

    Over the month of October, we discussed the many aspects of pregnancy, from many different perspectives.    The Grenier Family   A Mother’s Love Welcoming Oliver Options- With Dr. Gurvitz 30 Days of A Grieving Mother    

  4. A Journey Shared – Joseph Burns

    In the month of November we are focusing our attention on gratitude, and how despite all the hardships that life brings, there are so many beautiful things for which we have to be grateful. Today we hear from Joseph, a CHD warrior, studying to be a physician himself.   Throughout my life, I have been the…

  5. 30 Days of A Grieving Mother

    Losing a child is a trial like no other. There is no one set way to grieve. There is no one way to carry on. In this special post, Heather Speakman, shares part of her family’s journey after the loss of her daughter, Madison.

  6. Options- With Dr. Gurvitz

    In the final week of our October theme, we hear from Dr. Gurvitz, who explores the many different options that women with CHD have, when they are thinking about starting a family.  As both a pediatric and adult congenital cardiologist, I have learned to care for all ages of patients in many different circumstances.  As…

  7. Welcoming Oliver

    This week we are continuing to explore the challenges of pregnancy for women with CHD. Today we will hear from Deanna, a heart warrior, who discusses the complications of pregnancy. However in the end, it was all worth it.  Like so many women with Congenital Heart Disease (CHD), I have been told many things about…

  8. A Mother’s Love

    “Pregnancy is hard. Having a congenital heart defect (CHD) during pregnancy is even harder.”
    Loryn McGill is a heart warrior and mother. Loryn shares her experience with pregnancy, and discusses the challenges and beauty, of motherhood.

  9. Katherine Lange

    Gary and I went to our routine, 20 week ultrasound for the anatomy scan of our little nugget. We were excitedly watching our sonographer go through her hands, feet, arms, legs, kidneys, liver, then her heart. She finished and told us to wait in the room, while she went to talk to the doctor. We…

  10. The Grenier Family

    As young women with CHD, female patients are often cautioned against the idea of pregnancy, as they start to explore the idea of building a family. This October, we will hear from strong, CHD warrior women, as they share their miracle birth stories. Today, Anik Grenier shares the journey she and her husband took to create…