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  1. A New Plan

    Finding out your child will be born with a heart defect may cause some of the plans you have for them to disappear, it may cause you to question whether you can be the parent to them that you hoped. Read how dad, Matt, learned to adjust his dreams for his son and encourage him to do HIS best.

  2. All Life’s Moments Are Brush Strokes

    All Life’s Moments Are Brush Strokes

    Like Monet’s San Giorgio Maggiore at Dusk, our lives are full of small strokes of color that require us to take a step back to see the bigger picture. Heart Dad, Chris Perez, shares how he’s learned to view his family’s journey with CHD this way.

  3. To My Mom…

    In this open letter, one HLHS warrior shares what he loves most about his mom.

  4. Mother’s Day Q&A

    In this week’s blog, amazing heart moms, warriors, and 2 junior advocates talk motherhood and what they love most about their moms in this mother’s day Q&A.

  5. Head and Heart with Dr. Creel

    For the month of April, we are exploring mental health, and what mental health means for a CHD family.Today we’ll hear from Dr. Creel, a Certified Grief Recovery Specialist, as she shares her experience with CHD families.   Fifteen years ago, when I first began my work in the field of working with heart patients, both…

  6. “Taboo” ACHD Activities

    **Disclaimer: ADULT CONTENT** Today’s post is on a subject that people with CHD don’t always discuss, but it is a very important topic nonetheless: sex. Below is one woman’s account of what it’s like to be with her husband and have CHD. Due to the sensitive nature of this topic our blogger has asked to…

  7. CHD and the Taboo Q&A: Your Questions Answered

      Today we revisit a couple of Q&A videos that were originally posted in October of 2017. The first video is an interview with Dr. Madsen, on alcohol and drugs. And the second video is an interview with Dr. Gurvitz on college, tattoos, and contraception.  Dr. Nicolas Madsen – Activity, Drugs & Alcohol, Related Conditions,…

  8. Taking Back Some Control

    For the month of March we will be discussing the various “taboo” subjects that come up in thinking about life with CHD. This week we will hear from Jennifer, a CHD warrior, who talks about how she took back some control by choosing some of her scars. I was trying on dresses for my best…

  9. PCHA: At the Heart with Melanie

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Melanie Toth, our State Chapter Coordinator.  …

  10. Somewhere to Turn

    Today, we will hear from Rita Higgins, a heart mom, who shares her story and recognizes the role that the PCHA plays in a heart family’s life. It was the first time that I saw my husband really cry. I can still hear his voice crackle with joy and love. I can still smell her…