Search Results for: back to school
August Recap – Back to School
Back to school is an exciting time of year, but it can also be a very hectic transition from summer. Throughout the month of August we reviewed tips and tricks on how to make the transition as smooth as possible.
Back to School Transitions with Abby
As the summer starts to come to an end, and we will discuss how CHD families prepare for going back to school. This week we have a story from Abby Hack, an adult CHD warrior, who is in her final years of college! When I was first diagnosed with a heart condition that required me…
Back to School Q&A Panel
This week, we are continuing to learn about how CHD affects people in their work, or at school. This is an interview that was conducted back in August 2017, but is still relevant to our topic today. Congratulations on the start of a new school year! Please introduce yourself. What grade will you or…
Recap – Back to School
For tips and resources on how to advocate for your child in school and a Q&A with members of the CHD community on their school experiences, check out the links to the blogs below. Making a Difference – By Kyle Herma A Complete Resource Guide – By Kyle Herma Advocating for a Program – By…
Back-to-School Q&A Panel
For our Q&A Back to School Panel this month, we interviewed three people to gain a greater perspective on how CHD affects kids differently during this exciting time of year. Congratulations on the start of a new school year! Please introduce yourself. What grade will you or your child be entering? Frances: My name is…
School with CHD During COVID
Making decisions during a global health pandemic is not easy. Making decisions regarding the education of a CHD patient during a global health pandemic is that much more complex. As school districts, colleges, and universities around the country announce Fall 2020 education plans, patients and families are left wondering what to do. Is it safe…
School Intervention: A Complete Resource Guide
CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin. Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included for easy reference. Going to school, for a child with complex medical condition, can be scary for everyone! Families might worry…
Taking Back Some Control
For the month of March we will be discussing the various “taboo” subjects that come up in thinking about life with CHD. This week we will hear from Jennifer, a CHD warrior, who talks about how she took back some control by choosing some of her scars. I was trying on dresses for my best…
School Intervention Series: Making A Difference
In the last week in our series on how CHD affects us at school and work, we hear from Kyle Herma, a School Intervention Specialist at Children’s Hospital of Wisconsin. Although this blog was originally posted in the summer of 2017, these tips, tricks, and recommendations for navigating a school’s system as a person who…
School Intervention Series: A Complete Resource Guide
CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School. Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of this post for easy reference. 2020 Update: School with CHD during COVID?! We’ve got you…
School Intervention Series: Advocating for a Program
In her final post of a three-part series, Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin, details how to start advocating for a dedicated school liaison at your cardiac center. If you missed the series, you can find her first post here and Complete Resource Guide here. Advocating for equal accesses to quality education for children with complex…
School Intervention Series: A Complete Resource Guide
CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School for part 2 of her 3 part series about School Intervention. If you missed her first post, you can find it here. Today, Kyle shares a wealth of information for navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of…
School Intervention Series: Making a Difference
Continuing our September Back-to-School theme, we are excited to introduce guest writer Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin. Kyle is blogging a 3-part series for CCHD beginning with an introduction on what she does and why. Over the next couple weeks, Kyle will share tips, tricks and recommendations for navigating a school’s system without a dedicated school…
From Clinic to Classroom: Kyle Landry
CHD is a family affair, and Kyle Landry’s mission to create the gold standard of educational care for the pediatric patient is fueled by her sister’s memory. Conquering CHD is grateful for her expertise, especially with our annual Back to School Series, and her continued work to help all patients and families in need. Read on for more of Kyle’s story, from the clinic to the classroom.
July Recap – Summer Fun
The summer season can be a ton of fun, and a great time to get outside! But it can also be overwhelmingly hot when engaged in outdoor activities. In the month of July, we learned a couple of tips and tricks on how to beat the heat, and how CHD warriors like to spend their…
Jackson was born on Easter Sunday, 2001. We brought our perfect 8lb 6oz baby home from the hospital and enjoyed two days with our new little one. All seemed well; Jack was a wonderful, healthy baby. At least that’s how it appeared when we were discharged from the hospital. Things went well for the first…
Health Disparities Q&A
Conquering CHD held The Meeting on Health Disparities in Congenital Heart Disease on February 28, 2021. Due to time constraints not every question could be answered live. The expert panelists have provided answers below.
CHD and Cancer: Is there a connection?
Is there a connection between congenital heart disease and cancer?
When you were a child with CHD you probably had someone who helped you with all sorts of things related to your heart health and its impact on your life. As you get older, it is important that you learn how to do these things by yourself. This Conquering CHD Transition Checklist can help as…
COVID-19 & CHD: Town Hall Wrap Up
Thank you to the patients and families who participated in our live Town Hall on June 16th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for…
Family and Medical Leave Act (FMLA) Fact Sheet
As adults, we can’t have our parents call us in sick to school when we have extended medical needs or family to take care of, but we may not be eligible for extended disability leave from work. The Family Medical Leave Act (FMLA) could be a good option for you if you or your loved…
Summer Fun with Artyom and Taosies!
This week we will hear from Artyom and Taosies, two heart brothers who love to have fun during the summer! Together, they share tips on how to beat the heat and have a blast this summer! The thought of summer conjures images of sunshine, swimming pools, road trips, neighborhood block parties, and lots of time…
A New Plan
Finding out your child will be born with a heart defect may cause some of the plans you have for them to disappear, it may cause you to question whether you can be the parent to them that you hoped. Read how dad, Matt, learned to adjust his dreams for his son and encourage him to do HIS best.
All Life’s Moments Are Brush Strokes
Like Monet’s San Giorgio Maggiore at Dusk, our lives are full of small strokes of color that require us to take a step back to see the bigger picture. Heart Dad, Chris Perez, shares how he’s learned to view his family’s journey with CHD this way.
Mother’s Day Q&A
In this week’s blog, amazing heart moms, warriors, and 2 junior advocates talk motherhood and what they love most about their moms in this mother’s day Q&A.
The Unexpected Defibrillator
Growing up with CHD and constantly facing your own mortality is a very scary reality. For many warriors, anxiety can arise from the myriad of worries. Today we’ll hear from Danielle Sikorski, a heart warrior who shares her personal experience and how she tries to mitigate some of the stresses her daily life. Please note that…
Head and Heart with Dr. Creel
For the month of April, we are exploring mental health, and what mental health means for a CHD family.Today we’ll hear from Dr. Creel, a Certified Grief Recovery Specialist, as she shares her experience with CHD families. Fifteen years ago, when I first began my work in the field of working with heart patients, both…
Somewhere to Turn
Today, we will hear from Rita Higgins, a heart mom, who shares her story and recognizes the role that the CCHD plays in a heart family’s life. It was the first time that I saw my husband really cry. I can still hear his voice crackle with joy and love. I can still smell her…
At the start of the new year we often reflect on the year that has just passed, and for most of us, work and/or school is a large part of that reflection. We are kicking off the year with a series on how CHD affects patients, and families at school and work. This post is…
Angels in Scrubs
In times of hardships, it can often be difficult to maintain gratitude. This week, Heather Speakman shares with CCHD how hardships can often teach us the most about gratitude. It’s the Eve of Thanksgiving and I can’t help but feel overwhelming gratitude to the team of people that take care of our sweet Madison. I…