Blog
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Overcoming the Odds with Expert Fetal Cardiology Care: Zeke and Zane’s Story
Zane had three open heart surgeries before he turned 3. And surprisingly, he had a more routine care journey than his brother, Zeke. Zeke and Zane were both diagnosed with hypoplastic left heart syndrome (HLHS) before birth. As far as congenital heart diseases go, HLHS falls on the rarer end of the spectrum. The odds…
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Austin Thomas Erb
9.14.22-11.26.22 When we first learned that Austin would be admitted to Rocky Mountain Hospital for Children PICU for open heart surgery at 3 weeks old, we were nervous and anxious for what was ahead. However, nothing would truly prepare us for what the next 53 days would bring. The feeling of leaving your baby in…
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Addison Gutierrez
Hi my name is Addison Gutierrez! On June 21, 2008 my mom went in for a routine ultrasound. She had low amniotic fluid which meant that she had to have an emergency C section. My dad was a surgery resident at the hospital so he was able to meet her there. I was born at 35 weeks with…
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U.S. News Hospital Rankings Are One Piece of the CHD Care Puzzle
Where to receive care is one of the most important decisions a family can make. Conquering CHD has a strong commitment to transparency and ensuring patients and families have essential information at their fingertips when they need it to assist them in making the best choice for their family. With the publishing of this year’s…
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The Oasis: Q+A with Sam Bish
Sam is a former USMC mortarman and Computer Engineer now stay-at-home dad and caregiver to Cillian. He is the Co-Founder to Heart Warrior Ministries and facilitator to the Oasis, an online gaming group for dads with children who have Congenital Heat Disease. His vision to begin the Oasis began when he was inpatient for a…
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A Life Raft: A Parent’s Experience using the Guided Questions Tool
The Guided Questions tool (in PDF) was designed to help parents promote discussion with their cardiac care team. At the Conquering CHD (CCHD), we believe that information is important when making decisions about the care of your child. The tool is broken into three key aspects of care: quality data, patient experience and looking ahead. Esther Kinney…
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Summer Camp: Where Connection Makes a Splash
Summer camp. The very words conjure up images of bonfires, canoeing, and making lifelong friends. But for children with Congenital Heart Disease (CHD), the traditional camp experience might not be an option. Yet, the desire for connection, for belonging, remains just as strong. Thankfully, there are incredible summer camps designed specifically for kids with CHD….
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Teen Topics – The Top 10 Things to Remember About CHD as an Adult
It often seems that the “taboo topics” in life aren’t really all that relevant until your teen years. As the seasons change, new milestones come and go. This can be an especially trying time in the life of an adolescent with congenital heart disease, especially as they are undergoing the major transition of leaving the nest…
