Blog
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#ConqueringCHD Week 2019
Here are a few great ways to join us in celebrating 6 years of Conquering CHD! It’s your week to shine as a PCHA #ConqueringCHD social media ambassador! PCHA celebrates six life-changing years this month! But it’s not about us…. It’s about YOU! Volunteers all over the country serve families with CHD in many different ways….
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School Intervention: A Complete Resource Guide
PCHA welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin. Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included for easy reference. Going to school, for a child with complex medical condition, can be scary for everyone! Families might worry…
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Edward Bauman Celebrates One Year Post-Op
One year after surgery, Adult CHD patient, Edward Bauman, decided to mark the occasion by creating a video that shares his experience preparing for and immediately following his procedure. Watch to hear about his journey and his tips and tricks that may help on yours! For more from Edward and his follow up video at…
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Back to School Transitions with Abby
As the summer starts to come to an end, and we will discuss how CHD families prepare for going back to school. This week we have a story from Abby Hack, an adult CHD warrior, who is in her final years of college! When I was first diagnosed with a heart condition that required me…
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Family and Medical Leave Act (FMLA) Fact Sheet
As adults, we can’t have our parents call us in sick to school when we have extended medical needs or family to take care of, but we may not be eligible for extended disability leave from work. The Family Medical Leave Act (FMLA) could be a good option for you, if you or your loved…
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July Recap – Summer Fun
The summer season can be a ton of fun, and a great time to get outside! But it can also be overwhelmingly hot when engaged in outdoor activities. In the month of July, we learned a couple of tips and tricks on how to beat the heat, and how CHD warriors like to spend their…
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Make the Most of the Summer with Trinity
As our summer fun starts to wind down, we will hear from Trinity, a heart warrior who knows how to have a good time and beat the heat during the summer! Summer is one of the best times of the year. No school, beach time, and warm weather (which is something that Wisconsin could use…
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Summer Fun with Artyom and Taosies!
This week we will hear from Artyom and Taosies, two heart brothers who love to have fun during the summer! Together, they share tips on how to beat the heat and have a blast this summer! The thought of summer conjures images of sunshine, swimming pools, road trips, neighborhood block parties, and lots of time…
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Summer Fun at Camp Odayin
For the month of July, we are bringing you stories of how CHD families enjoy the summer, along with tips and tricks on how CHD patients can beat the heat. This week we will hear from Laura Hoagland, an adult CHD patient and avid adventurer. Laura shares her experience with Camp Odayin and explains how…
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Tips to Beat the Summer Heat
The summertime sunshine can be a welcome treat after a long winter, but it can also be dangerous. Many people with complex CHD have difficulty tolerating the summer heat. Here’s a reboot of what our community of families and patients shared with us about what they do to beat the heat during the hottest season….