Blog
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Luke Toth
Like many newly married couples, we were over the moon to learn we were expecting our first baby! We vividly remember us deciding the entire ride there if we should find out whether we were having a boy or girl. Soon after arriving, we quickly learned that instead of finding out our baby was a…
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Hospital Navigator: Advocacy, History & How To
Hospital Navigator is Conquering CHD’s newest resource for patients and families, and launched on August 5th. Advocacy Hospital Navigator works for all patients and families when all centers participate. And we need YOU to make it happen! Advocating for your center to join Hospital Navigator is as easy as 1-2-3: 1) Check the status of…
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7th Summit on Transparency and Public Reporting: Recap
The 7th Summit on Transparency and Public Reporting of Pediatric and Congenital Heart Disease Outcomes was held virtually on September 29, 2020 with nearly 200 attendees. Catch up on Conquering CHD’s historic efforts in the field, then read on for the Summit summary and full recording. Our first virtual Summit was a big success. Nearly…
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COVID-19 Update
As the COVID-19 situation is rapidly changing, Conquering CHD is committed to providing its community with trusted resources from expert sources. Please continue to watch this blog and our social media channels for information pertinent to the CHD community. Read our original statement on COVID-19 from March 13, 2020 here. WHAT WE KNOW Some CHD patients are…
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Breastfeeding & CHD
Thank you to the families who participated in our live webinar on August 25th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for the community to…
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School with CHD During COVID
Making decisions during a global health pandemic is not easy. Making decisions regarding the education of a CHD patient during a global health pandemic is that much more complex. As school districts, colleges, and universities around the country announce Fall 2020 education plans, patients and families are left wondering what to do. Is it safe…
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COVID-19 & CHD: Town Hall Wrap Up
Thank you to the patients and families who participated in our live Town Hall on June 16th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for…
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From the Dad of a Heart Warrior
This is an account of the perspective of one heart dad’s experience with a child with CCHD (complex congenital heart defects). This is especially for those who are just receiving a diagnosis for their child – read to the end, even if the beginning seems scary! Anxiety. Fear. Panic. Despair. Those are a few of…
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Covid 2020: Stories of Recovery
Conquering CHD spoke with three members of the CHD community who contracted and conquered COVID-19 – a youth patient as shared by her mother, an adult patient/medical student, and a pediatric cardiologist. While their experiences with COVID-19 were difficult, their stories of recovery ultimately leave us with hope for the human spirit.
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Participate in Research about COVID-19
Help improve the understanding of how COVID-19 impacts CHD Patients and families want to know how COVID-19 could affect their child or themselves. Right now, we don’t know. But you can help. This study is unique because it collects information directly from people with CHD, of all ages and all types of CHD. Other research…