Blog

  1. The Oasis: Q+A with Sam Bish

    Sam is a former USMC mortarman and Computer Engineer now stay-at-home dad and caregiver to Cillian. He is the Co-Founder to Heart Warrior Ministries and facilitator to the Oasis, an online gaming group for dads with children who have Congenital Heat Disease. His vision to begin the Oasis began when he was inpatient for a…

  2. A Life Raft: A Parent’s Experience using the Guided Questions Tool

    The Guided Questions tool (in PDF) was designed to help parents promote discussion with their cardiac care team. At the Conquering CHD (CCHD), we believe that information is important when making decisions about the care of your child. The tool is broken into three key aspects of care: quality data, patient experience and looking ahead. Esther Kinney…

  3. Summer Camp: Where Connection Makes a Splash

    Summer camp. The very words conjure up images of bonfires, canoeing, and making lifelong friends. But for children with Congenital Heart Disease (CHD), the traditional camp experience might not be an option. Yet, the desire for connection, for belonging, remains just as strong. Thankfully, there are incredible summer camps designed specifically for kids with CHD….

  4. Teen Topics – The Top 10 Things to Remember About CHD as an Adult

    It often seems that the “taboo topics” in life aren’t really all that relevant until your teen years. As the seasons change, new milestones come and go.  This can be an especially trying time in the life of an adolescent with congenital heart disease, especially as they are undergoing the major transition of leaving the nest…

  5. Jace Reminds Us of Hope and Joy

    Jace, born in October 2021, arrived with a hefty challenge – Tetralogy of Fallot with Pulmonary Atresia and Double Outlet Right Ventricle, a mouthful for such a tiny fighter. At just 10 days old, he embarked on his first adventure: a complex heart repair at Columbia University Medical Center. Though the operation was a success,…

  6. Congenital Heart Futures Reauthorization Act 2024

    March 12, 2024 There’s positive news for the millions of Americans living with congenital heart disease (CHD) and their families. The Congenital Heart Futures Reauthorization Act (H.R. 7189) has successfully cleared a crucial hurdle by being marked up favorably by the House Energy and Commerce Health Subcommittee. This critical development signifies continued federal support for:…

  7. Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story

    Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…

  8. CDC Role in the CHD Community

    Welcome to our latest blog update, where we delve into the significant contributions of the Centers for Disease Control and Prevention (CDC) and the National Center on Birth Defects and Developmental Disabilities (NCBDD) in the realm of Congenital Heart Disease (CHD). These organizations are at the forefront of advancing our understanding and improving the lives…

  9. National Committees Are Back!

    We have some fantastic news to share with all of you! After a hiatus, we are thrilled to announce the triumphant return of Conquering CHDs National Committees.

  10. How to Help Your Child Stay Still During Medical Imaging

    Medical imaging plays an essential role in CHD care. However, for parents, the thought of their child undergoing medical imaging can be a source of stress and anxiety.

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