Blog
-
Conquering CHD Welcomes Carissa Ostrom as Executive Director
Dear friends and community, As we celebrate ten years of Conquering CHD, it also marks my 18th year as an advocate for congenital heart disease. I am entering into a new season of life as our youngest son has successfully transitioned to managing his CHD care and is off to college this fall. It is…
-
Patient Engaged Research Funding
Research funding is an essential part of Conquering CHD.
-
Hayden’s Legacy: A Safe Space for Grieving Families
We have learned that it is not the walls of Hayden’s House of Healing that make it successful, but rather the spirit of the people that come and bravely share their stories, creating an incredible community of love and support.
-
9 Things to Monitor When Taking Medication for Congenital Heart Disease (CHD)
When it comes to managing CHD, medication plays a crucial role in ensuring optimal heart function and preventing potentially life-threatening complications. However, it’s essential to monitor certain aspects of your health while taking these medications to ensure their effectiveness and avoid potential side effects. Some types of monitoring can be done right at home; other…
-
Top 10 Things to Know about Mental Health & CHD
When heart defects are first diagnosed, the heart structure and function get all the attention. However, congenital heart disease (CHD) may have a lifelong impact on your whole being. This includes your mental health. It is important that we make mental health care a normal part of CHD care. As an adult with CHD we…
-
A Parent’s Guide to Traveling with Kids with CHD
Every parent wants to take their child on an adventure that creates lasting memories. But when your child has CHD, planning a trip requires extra preparation to ensure their safety and well-being. Before you explore destinations near and far, here are 7 tips to help you navigate the challenges of traveling with kids with CHD,…
-
U.S. News Hospital Rankings Are One Piece of the CHD Care Puzzle
Where to receive care is one of the most important decisions a family can make. Conquering CHD has a strong commitment to transparency and ensuring patients and families have essential information at their fingertips when they need it to assist them in making the best choice for their family. With the publishing of this year’s…
-
Medications for Congenital Heart Disease: What Every Parent Should Know
While this blog post has been reviewed by clinical experts, it does not substitute for personalized advice from your healthcare providers. Be sure to talk to your doctor if you have any questions or concerns. Congenital heart disease is a daunting diagnosis for any parent. But, with the right treatment plan in place, your child…
-
Half a Heart, A Whole Lot of Fatherly Love
Three open heart surgeries and no cure. That was the uncertain future surrounding our son Theo’s life expectancy. In March 2020, the Fetal Heart Center at Children’s Health Dallas determined Theo had Tricuspid Atresia and Hypoplastic Right Heart Syndrome, meaning he would be born with only half a heart. My wife Brooke and I were…
-
Stay-at-Home Dad Rides the CHD Rollercoaster with Rainbow Baby
Today, at two years old, my son Emerson is a mostly typical toddler. He wakes up each day in good spirits. His scars, his need for occasional medication, and certain limitations serve as reminders of his medical journey. And what a journey it’s been. Our rollercoaster began with devastating news during Emerson’s 20-week anatomy ultrasound….