Blog
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7th Summit on Transparency and Public Reporting: Recap
The 7th Summit on Transparency and Public Reporting of Pediatric and Congenital Heart Disease Outcomes was held virtually on September 29, 2020 with nearly 200 attendees. Catch up on Conquering CHD’s historic efforts in the field, then read on for the Summit summary and full recording. Our first virtual Summit was a big success. Nearly…
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COVID-19 Update
As the COVID-19 situation is rapidly changing, Conquering CHD is committed to providing its community with trusted resources from expert sources. Please continue to watch this blog and our social media channels for information pertinent to the CHD community. Read our original statement on COVID-19 from March 13, 2020 here. WHAT WE KNOW Some CHD patients are…
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Breastfeeding & CHD
Thank you to the families who participated in our live webinar on August 25th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for the community to…
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Hospital Navigator: History, How To & Advocacy
Hospital Navigator is Conquering CHD’s newest resource for patients and families, and launched on August 5th. When you or your family member has congenital heart disease, it can feel like there are so many decisions to make, especially when faced with surgery or another medical procedure. One key decision you will have to make is…
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School with CHD During COVID
Making decisions during a global health pandemic is not easy. Making decisions regarding the education of a CHD patient during a global health pandemic is that much more complex. As school districts, colleges, and universities around the country announce Fall 2020 education plans, patients and families are left wondering what to do. Is it safe…
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COVID-19 & CHD: Town Hall Wrap Up
Thank you to the patients and families who participated in our live Town Hall on June 16th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for…
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From the Dad of a Heart Warrior
This is an account of the perspective of one heart dad’s experience with a child with CCHD (complex congenital heart defects). This is especially for those who are just receiving a diagnosis for their child – read to the end, even if the beginning seems scary! Anxiety. Fear. Panic. Despair. Those are a few of…
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Covid 2020: Stories of Recovery
Conquering CHD spoke with three members of the CHD community who contracted and conquered COVID-19 – a youth patient as shared by her mother, an adult patient/medical student, and a pediatric cardiologist. While their experiences with COVID-19 were difficult, their stories of recovery ultimately leave us with hope for the human spirit.
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Participate in Research about COVID-19
Help improve the understanding of how COVID-19 impacts CHD Patients and families want to know how COVID-19 could affect their child or themselves. Right now, we don’t know. But you can help. This study is unique because it collects information directly from people with CHD, of all ages and all types of CHD. Other research…
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To the mama out there learning your baby’s future will be different than you envisioned…
Being a mom is a tough job, even scary at times, but the love for our children makes it all worthwhile. This Mother’s Day, one veteran heart mom has a message for those newly taking on the role. I’ve been in your shoes. Sitting in a similar, hard-backed chair, hunched over my lap, clutching tissues,…