Blog
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COVID-19 & CHD: Town Hall Wrap Up
Thank you to the patients and families who participated in our live Town Hall on June 16th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for…
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COVID-19 Update
As the COVID-19 situation is rapidly changing, Conquering CHD is committed to providing its community with trusted resources from expert sources. Please continue to watch this blog and our social media channels for information pertinent to the CHD community. Read our original statement on COVID-19 from March 13, 2020 here. WHAT WE KNOW CHD patients of all…
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From the Dad of a Heart Warrior
This is an account of the perspective of one heart dad’s experience with a child with CCHD (complex congenital heart defects). This is especially for those who are just receiving a diagnosis for their child – read to the end, even if the beginning seems scary! Anxiety. Fear. Panic. Despair. Those are a few of…
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Covid 2020: Stories of Recovery
Conquering CHD spoke with three members of the CHD community who contracted and conquered COVID-19 – a youth patient as shared by her mother, an adult patient/medical student, and a pediatric cardiologist. While their experiences with COVID-19 were difficult, their stories of recovery ultimately leave us with hope for the human spirit.
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Participate in Research about COVID-19
Help improve the understanding of how COVID-19 impacts CHD Patients and families want to know how COVID-19 could affect their child or themselves. Right now, we don’t know. But you can help. This study is unique because it collects information directly from people with CHD, of all ages and all types of CHD. Other research…
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To the mama out there learning your baby’s future will be different than you envisioned…
Being a mom is a tough job, even scary at times, but the love for our children makes it all worthwhile. This Mother’s Day, one veteran heart mom has a message for those newly taking on the role. I’ve been in your shoes. Sitting in a similar, hard-backed chair, hunched over my lap, clutching tissues,…
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Social Distancing and CHD
Taking care of your basic needs during a time when things are not so basic. While we are still learning more about the impact of COVID-19 and CHD, there is one thing that is becoming more and more clear: Social. Distancing. Is. Hard. But more than ever, we need to take care of our mind,…
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Carol’s Transplant Story – Donate Life Month
Growing up with congenital heart defects, I had multiple surgeries and procedures to help give me the best quality of life possible. Despite this, by the time I was in my early 40’s, I was having worsening swelling, shortness of breath, and fatigue, which weren’t improving, even with increasing my medications. My ACHD doctor felt it…
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Volunteers Change Lives
During this Volunteer Appreciation Week, Conquering CHD wants to thank the many volunteers that make accomplishing our mission possible.
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Shared Decision Making in Telemedicine During COVID-19
CHD clinicians from around the country explain how their centers are using Conquering CHD’s Guided Questions Tools during telemedicine appointments with patients and families.