Blog

  1. Pediatric CHD and COVID-19: Vaccines, Variants, and Very Important Decisions

    Making decisions during a global health pandemic is not easy. Making decisions regarding a CHD patient during a global health pandemic is that much more complex. CHD patients and families alike are weighing their concerns about pediatric CHD in the COVID-19 world. Questions like “how can I weigh the various risks for my child?,” “how…

  2. What Is Congenital Heart Disease In Adults?

    Congenital heart disease is something that you are born with, that causes one or more problems with the heart’s structure. It gets its name from the fact that congenital means being born with the defect. Congenital Heart Disease, changes how the blood flows through your heart. Some congenital heart defects can cause serious issues, while…

  3. What Color Represents Heart Disease?

    Heart disease kills countless people around the world every single year, and it is a primary point of concern for leading health professionals for this reason. The truth is that heart disease can affect any family at any point in time, which is why so many people are looking to raise awareness and find new…

  4. Marilyn’s CHD Roller Coaster

    Marilyn is a CHD pioneer, witnessing the progress of cardiac care over the course of seven decades. A true marvel, Marilyn has lived an amazing life, full of ups and downs, but never losing hope. Have you ever tried explaining what it’s like living with a Congenital Heart Defect (CHD)?  It’s like explaining a roller…

  5. Imagining the Possibilities – Rainbows of Hope

    Imagine for a moment, a world where all children can see themselves in the pages of their favorite story. Think back to your childhood and your favorite children’s books. Which books come to mind? Why did those books leave such an impact – one which still resonates years later? For so many children, early experiences…

  6. A New Chapter Begins

    Announcing Amy Basken as Next Executive Director

  7. Worth Every Single Minute

    Growing up with CHD, we were often focused on staying healthy or recovering from various procedures, we may not have had the chance to consider how CHD may impact our future life goals, like starting a family. Planning for pregnancy, childbirth, and parenthood comes with a lot of uncertainty for women with CHD, often leading…

  8. Facing Rainbows & Storms

    You would never guess CHD was their norm, that caused them to face both rainbows and storms.

  9. It’s the Living Part that Matters

    When Julie’s daughter Rose was born with a CHD in 1984, she knew the road ahead wouldn’t be easy, but she was determined to make the years, however many there would be, count. No one ever thinks that one day they will need to pick out a headstone for their child’s grave. No one ever…

  10. What Is Pediatric Congenital Heart Disease?

    Congenital heart disease (CHD) is known to affect people of all ages from around the globe, but the challenges begin very early. This condition affects nearly 1% of births in the United States alone, impacting 40,000 births on average a year. The nature of CHD can vary from one case to the next, with some…