Blog

  1. Imagining the Possibilities – Rainbows of Hope

    Imagine for a moment, a world where all children can see themselves in the pages of their favorite story. Think back to your childhood and your favorite children’s books. Which books come to mind? Why did those books leave such an impact – one which still resonates years later? For so many children, early experiences…

  2. A New Chapter Begins

    Announcing Amy Basken as Next Executive Director

  3. Worth Every Single Minute

    Growing up with CHD, we were often focused on staying healthy or recovering from various procedures, we may not have had the chance to consider how CHD may impact our future life goals, like starting a family. Planning for pregnancy, childbirth, and parenthood comes with a lot of uncertainty for women with CHD, often leading…

  4. Facing Rainbows & Storms

    You would never guess CHD was their norm, that caused them to face both rainbows and storms.

  5. It’s the Living Part that Matters

    When Julie’s daughter Rose was born with a CHD in 1984, she knew the road ahead wouldn’t be easy, but she was determined to make the years, however many there would be, count. No one ever thinks that one day they will need to pick out a headstone for their child’s grave. No one ever…

  6. What Is Pediatric Congenital Heart Disease?

    Congenital heart disease (CHD) is known to affect people of all ages from around the globe, but the challenges begin very early. This condition affects nearly 1% of births in the United States alone, impacting 40,000 births on average a year. The nature of CHD can vary from one case to the next, with some…

  7. When Is CHD Awareness Week?

    It isn’t a secret that congenital heart disease (CHD) is a problem that impacts countless newborns, children, and adults around the world. With 1 in every 100 newborns being impacted by this condition, there is a big push to raise awareness and create a space where everyone can discuss CHD so that we can all…

  8. How many types of CHD are there?

    Congenital heart defects are problems with the heart that you are born with. They are the most common kind of birth defect, and there are various different types of CHD. Most of these types affect the walls, valves, or blood vessels of the heart. In some cases, they are serious and require different surgeries and…

  9. Can congenital heart disease be cured?

    There is no cure for Congenital Heart Disease. Although you can have surgery to repair your heart, you will never be cured. It is very common to have surgery to repair your heart, but there may always be long-term effects of heart surgery. This can include abnormal heartbeats. In many cases, a cardiologist can detect…

  10. Our Beautiful Boy – JT’s Story

    My husband, Michael, and I had been trying to have a baby for over three years (through gestational surrogacy), and after several failed attempts and a miscarriage, we finally made it to the second trimester! When Michael, Michelle (our surrogate), and I attended the 20-week anatomy scan, we were shocked to find out that our…