Blog

  1. The Heart-Brain Connection: Neurodevelopment in CHD – Overcoming Obstacles 

    Thank you to everyone who participated in our live webinar “Neurodevelopment in CHD: Overcoming Obstacles” on June 14th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation. We couldn’t meet in person in Washington D.C. this year, however, we felt our community would benefit from…

  2. One Gear in the CHD Machine… U.S. News Releases 2022 Rankings

    Congenital Heart Disease (CHD), and all of the many decisions that go along with it, often feel like a complicated machine with too many moving parts. We’re here to help patients and families. CHD can be complicated. For many patients and families, the CHD journey, especially CHD care, can feel like a complicated machine with…

  3. Mental Health 101

    Congenital heart disease is never just about the heart. CHD has a real, often invisible, impact on all aspects of life and health for patients and families, especially when it comes to mental health. View this resource En Español Congenital heart disease is never just about the heart. CHD has a real impact on all…

  4. Salud Mental 101

    La cardiopatía congénita nunca se trata solo del corazón. La CHD tiene un impacto real, a menudo invisible, en todos los aspectos de la vida y la salud de los pacientes y sus familias, especialmente cuando se trata de la salud mental. Vea este recurso en inglés aquí La cardiopatía congénita nunca se trata solo…

  5. The Greatest Adventure Buddy

    Heart Dads play such an important role in their families – sometimes protector, sometime playmate, but always motivated by love. Father’s Day is just one of the chances we have to say thanks, to show our dads just how much they mean to us, and how their time and support were the greatest gifts a…

  6. Improving Access to Care for the LGBTQIA+ Community

    Access to the necessary care is already a critical issue for teens and adults in the CHD community. But for members of the LGBTQIA+ Community, the added uncertainty over stigma can lead to inappropriate care and even avoidance of treatment altogether. In this week’s guest blog, Joseph Lindsey, a public health professional, discusses the hurdles…

  7. Supporting Heart Siblings at Home – Part 2

    It may be difficult to balance the needs of your child with CHD and those of your heart healthy child. Siblings at home may feel left out or confused, and we may not always know how to best support them. In the final part of this blog series, Nicole Johnson, a Child Life Specialist, offers…

  8. Congenital Heart Disease

    Congenital Heart Disease Definition

    Every year, families are impacted by Congenital Heart Disease—find out what it really means. Congenital heart disease (CHD) is a condition that impacts an astounding 40,000 babies every single year. Current estimates show that there are roughly 1.5 million adults who have been diagnosed with this disease, making it a key point of concern when…

  9. How Common is Congenital Heart Disease?

    Congenital Heart Disease influences people every year—find out just how common it is. Before a baby is born, we cannot always know what life will have in store for them. Every year, a high number of children are diagnosed with congenital heart disease (CHD). The impacts that CHD can have are significant, yet most parents…

  10. Family First: Amy Basken Steps Down as Executive Director

    Announcing Amy Basken as Next Executive Director