1. Jace Reminds Us of Hope and Joy

    Jace, born in October 2021, arrived with a hefty challenge – Tetralogy of Fallot with Pulmonary Atresia and Double Outlet Right Ventricle, a mouthful for such a tiny fighter. At just 10 days old, he embarked on his first adventure: a complex heart repair at Columbia University Medical Center. Though the operation was a success,…

  2. Congenital Heart Futures Reauthorization Act 2024

    Today, U.S. Representatives Gus Bilirakis (R-FL) and Adam Schiff (D-CA), along with original cosponsors Representatives Tony Cardenas (D-CA), Buddy Carter (R-GA), María Elvira Salazar (R-FL), and Darren Soto (D-FL), introduced the Congenital Heart Futures Reauthorization Act of 2024 – a bipartisan bill that will authorize continued funding for congenital heart disease research and surveillance programs at the…

  3. Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story

    Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…

  4. CDC Role in the CHD Community

    Welcome to our latest blog update, where we delve into the significant contributions of the Centers for Disease Control and Prevention (CDC) and the National Center on Birth Defects and Developmental Disabilities (NCBDD) in the realm of Congenital Heart Disease (CHD). These organizations are at the forefront of advancing our understanding and improving the lives…

  5. National Committees Are Back!

    We have some fantastic news to share with all of you! After a hiatus, we are thrilled to announce the triumphant return of Conquering CHDs National Committees.

  6. How to Help Your Child Stay Still During Medical Imaging

    Medical imaging plays an essential role in CHD care. However, for parents, the thought of their child undergoing medical imaging can be a source of stress and anxiety.

  7. Conquering CHD Welcomes Carissa Ostrom as Executive Director

    Dear friends and community,  As we celebrate ten years of Conquering CHD, it also marks my 18th year as an advocate for congenital heart disease. I am entering into a new season of life as our youngest son has successfully transitioned to managing his CHD care and is off to college this fall. It is…

  8. Patient Engaged Research Funding

    Research funding is an essential part of Conquering CHD.

  9. Hayden’s Legacy: A Safe Space for Grieving Families

    We have learned that it is not the walls of Hayden’s House of Healing that make it successful, but rather the spirit of the people that come and bravely share their stories, creating an incredible community of love and support.

  10. 9 Things to Monitor When Taking Medication for Congenital Heart Disease (CHD)

    When it comes to managing CHD, medication plays a crucial role in ensuring optimal heart function and preventing potentially life-threatening complications. However, it’s essential to monitor certain aspects of your health while taking these medications to ensure their effectiveness and avoid potential side effects. Some types of monitoring can be done right at home; other…

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