Blog
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Birth Defect Prevention & Awareness Month
Every January, Centers for Disease Control and Prevention (CDC) hosts National Birth Defects Prevention Month.
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Guide to Your ACHD Care
Congenital Heart Disease (CHD) is lifelong, and patients born with CHD need lifelong care based on the recommended guidelines. However, nearly 50% of patients stop getting care after age 13, and more than 60% after age 18. It is important to know what care you need now and what care you will need in the…
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Transition Checklist
When you were a child with CHD you probably had someone who helped you with all sorts of things related to your heart health and its impact on your life. As you get older, it is important that you learn how to do these things by yourself. This Conquering CHD Transition Checklist can help as…
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Preventative Care is Essential During a Pandemic
Dr. Rema Merhi of Las Vegas, Nevada co-authors this post, sharing critical reminders for families of pediatric heart patients during the pandemic. While most of us are worried about COVID-19, parents of pediatric CHD patients are definitely worried. In fact, they are so worried, they are refraining from receiving essential preventative medical care during the…
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COVID-19 Vaccines & CHD: Town Hall Wrap-Up
Thank you to the patients and families who participated in our live Town Hall on January 20th, as part of our CHD Wise educational series. Read on for the summary and full video presentation.
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COVID-19 Update
As the COVID-19 situation is rapidly changing, Conquering CHD is committed to providing its community with trusted resources from expert sources. Please continue to watch this blog and our social media channels for information pertinent to the CHD community. Read our original statement on COVID-19 from March 13, 2020 here. WHAT WE KNOW Some CHD patients are…
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Guide to Your Child’s Future Care
Congenital Heart Disease (CHD) is lifelong, and patients born with CHD need lifelong care based on the recommended guidelines. However, nearly 50% of patients stop getting care after age 13, and more than 60% after age 18. It is important to know what care your child needs now and what care they will need in…
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The PATCH Study: Initial Findings for Families
Researchers from University of Queensland have presented their initial findings from The PATCH Study. In 2019-2020, Conquering CHD collaborated with The PATCH Study team from University of Queensland in Australia. We asked parents of children with CHD ages 5 to 18 years to complete an anonymous online survey, primarily focusing on behavioral and executive function…
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Hospital Navigator: Advocacy, History & How To
Hospital Navigator is Conquering CHD’s newest resource for patients and families, and launched on August 5th. Advocacy Hospital Navigator works for all patients and families when all centers participate. And we need YOU to make it happen! Advocating for your center to join Hospital Navigator is as easy as 1-2-3: 1) Check the status of…
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Luke Toth
Like many newly married couples, we were over the moon to learn we were expecting our first baby! We vividly remember us deciding the entire ride there if we should find out whether we were having a boy or girl. Soon after arriving, we quickly learned that instead of finding out our baby was a…