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  1. Breaking News: NIH multi-centered research renewed!

    The Pediatric Congenital Heart Association is thrilled to learn that the NHLBI has approved a renewal of the Pediatric Heart Network for another grant cycle.  It has been approved for a 7-year grant period, with a total budget of approximately $52M.  This research network supports the necessary infrastructure for multi-centered research collaboration. We look forward…

  2. 5 Things You Shouldn’t Say to a Heart Dad

    The Pediatric Congenital Heart Association strives to empower whole families dealing with congenital heart disease.  That includes you, Dad.  Thanks, Chris for the great reminder! Dad, we’ve got your back and will strive to be more intentional! Let’s just put it out there: for a long time Dads have gotten a bad rap in the media.  We…

  3. Be The Forest

    One of the founding principles of the Pediatric Congenital Heart Association is collaboration.  We recognize that it takes a strong network of people to succeed, whether it is advocating, educating, or simply just making it through the day.  As Chris describes, we all need to be part of the forest. I’ve said it once and I’ll…

  4. “I am Conquering CHD.” You can, too!!

    1000 advocates in 30 days. We can do this! Help us “Conquer CHD” Click here to become a member of PCHA’s advocate network, today! Why? We need you.  Advocacy works.  It has increased federal research funding. It has helped expand CHD data collection to include people of all ages. It has raised the transparency discussion to…

  5. Supporting Development in Children with CHD

    The Pediatric Congenital Heart Association recognizes that with increasing knowledge of issues relating to long term outcomes for children with congenital heart disease, as a parent, it can be difficult to understand what it might mean for your child. In 2014, the American Heart Association published an article by leading neurodevelopmental and pscyho-social experts, including PCHA Medical…

  6. Media Advocacy

    “Advocacy groups have carved a niche for themselves in the broadcast industry’s policy-making apparatus by first defining key public interest issues and then by advocating ways by which broadcasters may address these issues.” – Museum of Broadcast Communications  PCHA has seen the tremendous benefits of social media advocacy. In the first half of May two of our…

  7. PCHA and YOU! – Town Hall Meeting

    Connect, Learn and Lead: PCHA TOWN HALL MEETING May 28, 2015 1pm ET Click here to register Join Executive Director, David Kasnic, and Director of Programs, Amy Basken, for our first, ever, PCHA Town Hall Meeting.  During this interactive webinar, you will be provided with a brief update on PCHA programs, and then have the…

  8. Pulse-ox Screening: New Key findings

    The Pediatric Congenital Heart Association supports early detection of critical congenital heart disease, including CCHD screening through the use of pulse-oximetry. The journal Pediatrics has published a new study estimating the number of infants with critical congenital heart defects (critical CHDs) potentially detected or missed through universal screening for critical CHDs using pulse oximetry. CDC…

  9. Ultra-Marathon Runners: The Value of Continuing Support for CHD Families

    The Pediatric Congenital Heart Association recognizes the need for open, honest communication to empower patients and parents of children with CHD.  As Margaret describes, support can come from many people: doctors, nurses, or those who have walked this journey ahead of us.  The need for support does not end when you leave the hospital. Contact your…

  10. Charting our future together: NHLBI’s Strategic Visioning Process

    An announcement from the National Heart, Lung, and Blood Institute (NHLBI).  Join the Pediatric Congenital Heart Association in advocating for CHD research by sharing what you believe are the challenges facing children and adults with congenital heart disease. We encourage you to take a moment and participate: The National Heart, Lung, and Blood Institute (NHLBI)…