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  1. Medical Advisory Board

    Through Collaboration – we will Conquer CHD. We are thrilled that we have succeeded in bringing together some of the greatest medical professionals in the field to serve on our medical advisory board.  These dedicated folks meet monthly, providing insight, direction and expertise to support the programming of PCHA.  We are so grateful!!   Brad Marino, MD,…

  2. January is Birth Defects Prevention Month

    Birth defects are common, costly and critical. Every 4½ minutes, a baby is born with a major birth defect.  Professionals, community groups and the public can act to reduce the risk of certain birth defects, detect those that occur as soon as possible and prevent secondary complications. Heart defects are the most common birth defect…

  3. Advocacy Success – Increased CHD Funding!

    Your efforts are working!   Congress is working hard to wrap things up before the end of the year. We are thrilled to report that the anticipated budget includes an increase of $1.1 million from $2.9 million to $4 million in 2015 to fund public health research and data collection through the Centers for Disease Control…

  4. Advocacy Success – Newborn Screening

    PCHA has been supporting the efforts of the March of Dimes to ensure passage of the Newborn Screening Saves Lives Act.  We have reached out to you in the past to contact your legislators about this key support for screening including CCHD screening.  We wanted to you with an exciting update!! From our Friends at…

  5. #GivingTuesday

    Click here to donate, today! Give Time. Give Money. Give Hope. Give Time: Join our 1 Voice / 40,000 Strong Campaign Give Money: Click here to donate, today! PCHA works hard to empower patients. Your support brings the patient voice to Washington D.C. through our upcoming Legislative Conference and ongoing advocacy activities as we work…

  6. Walking to Washington

    Miles Walked: 610/860   Donations Earned: $500.00 Join me as I ‘walk the walk’ in preparation to ‘talk the talk.’  I am walking from the Pediatric Congenital Heart Association National Office in Madison, WI ‘arriving’ in Washington D.C. just in time for the Congenital Heart Legislative Conference February 25-26, 2015. Follow my progress here. Just a few weeks left, a…

  7. In The Thick Of It

    I’m having one of those days. All I needed to do was reheat a bowl of soup for lunch.  We have been without a microwave for about a month, now, so heating anything is not quite as simple as it could be.  I dumped the leftovers into the small sauce pan, turned the burner on…

  8. Jacob Kilby

    I want to introduce you to an amazing young man who will change the way you look at the world. Jacob Kilby is a young, 19 year old local San Diego surfer who is facing a major health challenge. You often hear about many children and adults that are battling cancer or diabetes, but congenital heart defects…

  9. You = Winning! The Importance of Advocacy

    Throughout the month of October, PCHA is helping advocates meet with their legislators in district.  In this post, Tiffany takes a humorous look at why it is important to rise above the politics and meet with our legislators.  For more information about in-district meetings, visit our website or contact advocacy@conqueringchd.org. Although the polls may indicate the current recess on…

  10. Jack Radandt

    Jackson was born on Easter Sunday, 2001.  We brought our perfect 8lb 6oz baby home from the hospital and enjoyed two days with our new little one.  All seemed well; Jack was a wonderful, healthy baby.  At least that’s how it appeared when we were discharged from the hospital. Things went well for the first…