Blog
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School Intervention Series: Advocating for a Program
In her final post of a three-part series, Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin, details how to start advocating for a dedicated school liaison at your cardiac center. If you missed the series, you can find her first post here and Complete Resource Guide here. Advocating for equal accesses to quality education for children with complex…
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Cosponsor the Congenital Heart Futures Act of 2017 (S.477/H.R.1222)
We urge Congress to cosponsor the Congenital Heart Futures Reauthorization Act (S.477/H.R.1222). To cosponsor this important legislation please contact Max Kanner (max_kanner@durbin.senate.gov) with Senator Durbin’s office or Shayne Woods (Shayne.Woods@mail.house.gov) with Congressman Bilirakis’ office. Congenital heart disease is the most common birth defect and the leading cause of birth defect-related infant mortality. Nearly one third…
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Action Alert – Remind your Senators to fund CDC Efforts
DEADLINE: Friday May 12 Act Today! Ask your member of Congress to Sign the Durbin-Grassley FY2018 Congenital Heart Disease Appropriations Letter. It might be hard to look beyond the health care issues at hand, but there are other important Congenital Heart Disease issues that need our attention in Washington D.C., as well! Each year, we…
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American Stroke Awareness Month – The Asher James Foundation
For the month of May, CCHD will be focusing on American Stroke Awareness Month. In the 2nd post of our series, learn about the Asher James Foundation, founded by Jen DeBouver after the loss of her son Asher. In October 2012 our whole World changed. The outcome of our son’s life was about to change….
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An Open Letter to Jimmy Kimmel
As many of you have seen, Jimmy Kimmel made headlines this morning, after his heartfelt monologue last night on Jimmy Kimmel Live. Jimmy shared the story of how his son Billy was recently diagnosed with Tetralogy of Fallot and Pulmonary Atresia and underwent open heart surgery, shortly after birth. The Conquering CHD would like to take a moment to…
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Action Alert: FY2018 Appropriations
Email your Representative, today, and ask her or him to sign the Appropriations letter being circulated by CHD legislative champions Representatives Schiff and Bilirakis in support of congenital heart disease-related public health research and surveillance initiatives at the CDC. There is a lot going on in Washington D.C. While we haven’t stopped our efforts focusing on getting our…
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Join fellow advocates in D.C. and email Congress!
As you read this, more than 180 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2017 Congenital Heart Legislative Conference. They are asking their lawmakers to support research, data collection and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors for the recently…
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Congenital Heart Futures Act of 2017 (S.477/H.R.1222)
Revised Bill Language: H.R.1222 – Congenital Heart Futures Reauthorization Act of 2017, Engrossed Amendment Senate (12/12/2018) UPDATE, December 21, 2018: The Congenital Heart Futures Reauthorization Act was signed into law. We can all celebrate that a federal law was passed that will help shape the future for the CHD Community, across the lifespan, through robust funding of…
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Action Alert – Educate Congress About CHD!
It’s Time to Educate the New Congress about CHD! A new Congress not only brings new lawmakers to Washington D.C. but a whole host of new staff members, as well. Many of these folks have only a little knowledge of CHD, at best. With the current conversation about our nation’s healthcare system, it is important…
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Congenital Heart Legislative Conference 2017
Registration is now open! Conquering CHD, Children’s Heart Foundation, and Adult Congenital Heart Association invite you to attend Congenital Heart Legislative Conference 2017 March 1-2, 2017 Liaison Capitol Hill Hotel, Washington D.C. Your voice matters as we unite to educate our members of Congress about congenital heart disease. Learn about current CHD activities in Washington…
