Blog
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Taking a Break for Fun: Summer Possibilities with Margaret King
This week we are continuing with the theme of summer fun! Today we’ll hear from Margaret King, a Heart Mom, who spends her summer hanging out with her fun-loving son. In the CHD life, sometimes it’s hard to get a break. While summer brings a brief reprieve from school expectations and IEP goals, we…
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Advice – 10 Pieces of Advice for the New CHD Parent
Learning your child has a CHD can be overwhelming. Suddenly, you’re thrust into unfamiliar territory filled with strange terminology and new doctors. But so many families have bee there too, and they have so much knowledge to share, garnered through their experience. CCHD recently asked the CHD Community, families and patients, to share their advice…
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Mental Health – Catherine’s Story
As we continue the Mental Health Series, Catherine Paour, shares her story with CCHD. Misdiagnosis and a CHD discovered later in life has forced her to face anxiety and urged her to spread awareness. Lots of prayer, purpose and passion has prepared me for a whole (hole) new way of life! I kept…
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Happy Birthday CCHD – #ConqueringCHD Week!
Here are a few ways to celebrate our 4th Birthday with us! Use your Social Media talents as we work to reach 450,000 people and get 15,000 page likes! It’s your week to shine as a CCHD #ConqueringCHD social media ambassador! In February, our education efforts had a total weekly reach of 344,000 people for our…
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Donate Life Month – The Call
For the month of April, CCHD will be focusing on the theme of National Donate Life Month. In the third post of our series, Kathleen Sheffer, a heart and lung transplant recipient, shares her memory of the harrowing moments that came after the fateful call. I didn’t stress about packing absolutely everything I…
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National Donate Life Month – Becoming A Donor
For the month of April, CCHD will be focusing on the theme of National Donate Life Month. In the second post of our series, Jennifer Weiner, an adult CHD patient, shares why she feels passionately about organ donation and how to sign up as a donor. A while back, I got a letter from…
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National Reading Month: You’re Here for a Reason
For the month of March, CCHD will be focusing on the theme of National Reading Month. In the 3rd post of our series, CCHD’s Jessica Chenevert talks with us about one special book. Read on to hear why You’re Here for a Reason holds a special place in her heart. When I bought this children’s…
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A Letter To My Son
CCHD wishes all dads a Happy Father’s Day! We’re happy to share this letter written by Nolan Chenevert, who celebrates his second year as a dad to his son Barrett “Bear”. Dear Barrett, I remember so vividly how excited I was when your mom first told me that I was going to be a dad. I…
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A Thank You Note to Our CICU Nurse
Nurses are an integral part of CHD care, and we are so thankful for them! During National Nurses Appreciation Week, in conjunction with our Mothers Blog series, we share a letter from a mother to her child’s nurse. To the nurse who taught me how to be a new kind of mother, We raced through the CICU doors,…