Blog
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Wabi-Sabi: The beauty of our scars
“Wabi-sabi is a beauty of things imperfect, impermanent, and incomplete. It is the beauty of things modest and humble. It is the beauty of things unconventional.” –Nancy Walkup, from Japanese Aesthetics, Wabi-Sabi, and the Tea Ceremony My son, Kieran, has a wabi-sabi heart. As a child with HLHS (hypoplastic left heart syndrome), his heart…
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A Day in Little Rock
The perspective was daunting. There, in the cafeteria of Arkansas Children’s Hospital, behind tinted windows, gazing out over I630 I counted the endless number of cars that passed and wondered, “Do any of these drivers know what’s going on in here?” With my well earned cafeteria bucks (earned from endless hours in the NICU pumping…
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50 States, 50 Stories Campaign
6/23/14 Update: We now have ONLY 9 STATES LEFT!!! We are still seeking stories from: Delaware, Hawaii, Maine, Montana, Nevada, Oregon, Utah, Vermont and Wyoming. Share your story, now! The Challenge is on!! We are uniting our voices to fight for more data, more research and better transparency of quality information in order to Conquer…
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Rain Showers, Rainbows
Today’s guest post is from Margaret, mom to Kieran, where she describes her struggle to overcome the conflict between reality and her spiritual faith. CCHD does not endorse any specific faith or religion. Whatever your beliefs may be, hopefully you can relate to the resolution this mother finds in appreciating the hope and comfort she finds…
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Advocates in Action
We recently sent out an Action Alert, asking you, our incredible advocates, to contact your legislators to request increased research funding. Many of you sprung into action. Here are a few cute snip-its: 1) Say Cheese! Mirabel, her twin sister and her mom, stopped by Capital Hill to visit Congresswoman DeLauro’s amazing staff person, Eric…
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Thank You Volunteers!
Recognizing Volunteer Appreciation Week, April 6-12, 2014 It’s time to do some appreciating!!! Thank you to the more than 100 volunteers who have stepped up to partner with CCHD. Together, we are doing great things. Last night, my son asked if we could “pay it forward” and buy the meal for the person behind us…
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Congenital Heart Awareness – Saving lives in Iraq
Today’s guest post comes to us from half-way around the world. Preemptive Love Coalition is a team of champions who live and work in Iraq, striving to eradicate the backlog of Iraqi children waiting in line for lifesaving heart surgery in pursuit of peace between to communities at odds. 1 in 10. That’s how many…
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Even more new things…
I thought launching accounts in Facebook,Twitter, LinkedIn, and Instagram was quite an accomplishment for CCHD. But wait – there’s more! Official Newsletter CCHD just sent out its first official newsletter. Don’t miss out on any behind the scenes information, updates on our latest projects, and opportunities to volunteer or advocate. Click here to find our rudimentary sign-up form on…
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CCHD goes social…
Well, after a week of trial, error and lots and lots of learning… Conquering CHD is now social. Find us on Facebook, Twitter,LinkedIn, and Instagram.Don’t forget about our website! Facebook: Conquering CHD Find us, like us, share us. Share with us – tell us what you’ve been up to, why CHD education, advocacy or research matters to you….
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Today is your day, what will you do?
A thought provoking and sweet call to action! (Honestly, it makes me want to make a heart out of Jelly Beans to hang on my wall!)
