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  1. New Diagnosis – Fetal Echo

    More often now, than a generation ago, babies born with CHD are being diagnosed prenatally. This week, Dr. Sheetal Patel, from Lurie Children’s Hospital of Chicago and Assistant Professor of Pediatrics, Northwestern University Feinberg School of Medicine, explains the role prenatal echocardiography plays in diagnosing CHD and the benefit of that early diagnosis.       …

  2. Zipperstrong Project

    As we continue through heart month, one amazing program, called Zipperstrong, helps honor families affected by CHD and their stories. The work done by photographer SheRae Hunter helps remind us all that even our scars can be beautiful.        “I am the mommy of a child who is different.   All I ever want…

  3. #CHDAware – Heart Month 2018

    CHD Awareness Week has come to a close but there are still a few key ways to help us raise awareness through heart month and all year long! Participate in our Social Media campaign!  Use your social media talents to shine and join the #CHDAware social media storm February 7-14, the entire community comes together…

  4. Recap – Patient Engagement Tools

    Take a look back at our Patient Engagement Tool posts.   The Care Partnership Pyramid It is often difficult for parents and loved ones to know what to do in caring for their child during hospital stays, and it can often be a difficult topic to discuss. Christine Martinenza, RN, has implemented this month’s Patient Engagement…

  5. Be #CHDWise and be a part of our Give a HOOT about CHD Campaign!

    Here are a few key ways to join the movement: Hello Echo! We enlisted your help to name our cute, cuddly, and wise owl and boy did you deliver! With over 70% of the votes – we officially have a winner! With your overwhelming support, the name of the official mascot of The Pediatric Congenital…

  6. Recap – Stroke Awareness

      Hear from patients who have survived and thrived after suffering strokes; learn the warning signs and causes.   Stroke Warning Signs – By Sydney Taylor The Asher James Foundation  Molly’s Story Terese’s Story    

  7. Happy Birthday PCHA – #ConqueringCHD Week!

    Here are a few ways to celebrate our 4th Birthday with us! Use your Social Media talents as we work to reach 450,000 people and get 15,000 page likes! It’s your week to shine as a PCHA #ConqueringCHD social media ambassador! In February, our education efforts had a total weekly reach of 344,000 people for our…

  8. Support PCHA in the Final Hours of Macy’s Shop for a Cause Charity Challenge!

    PCHA is involved in the Macy’s Shop for a Cause Charity Challenge, a friendly fundraising competition raising money for causes like ours. We’ve got just over a few hours to go before our campaign ends. As of this morning we are sitting in 11th place sitting at $13,300 raised. When you add in the generous $3,000 from…

  9. Mental Health – Beyond Survival, The Struggle with Anxiety and Depression

    PCHA continues its series on Mental Health with a piece by nurse and PCHA -VA Board Member, Sydney Taylor. Here, Sydney discusses contributing factors and prevalence of Anxiety and Depression in patients and parents affected by Congenital Heart Disease.        For the first time ever, there are more adults living with a congenital…

  10. American Stroke Awareness Month – Terese’s Story

    For the month of May, PCHA has been focusing on American Stroke Awareness Month. In the 4th week of our series, Terese Quarino shares her experience with stroke.   I remember the day, like it was yesterday…. The Wednesday before Labor day weekend, I called my cardiologist to say I felt some funny beats in my…