Blog

  1. 2021 Impact Report

    View and print this report as a PDF Why We Exist 1 in every 100 newborns are born with congenital heart disease, making it the most common birth defect. That means every 15 minutes a new CHD story begins, altering the course of a family’s life in unpredictable ways for a lifetime. At Conquering CHD,…

  2. Community Fundraisers: Frequently Asked Questions

    So you’re ready to make a difference in the CHD community by creating a fundraiser but you’ve got some questions. No worries, we’ve got you covered! Here are a few answers to some of the most common fundraiser questions we get. Need help setting up your fundraiser? Start by reviewing our Conquering CHD Your Way…

  3. Transferring Care to a New Team

    Are you starting Adult Congenital Heart Disease (ACHD) care for the first time or moving away from your current center? Finding a new team and getting through your first visit with a new doctor can be challenging. Here are some steps to consider as you begin choosing your new care team, prepare for your first…

  4. 2019 Impact Report

    View and print this report as a PDF Letter from our Executive Director 2019 was a groundbreaking year for the Pediatric Congenital Heart Association (PCHA) in many ways. We accomplished all our strategic programmatic and financial goals, yet, more important was our inner growth. At the March 2019 Legislative Conference in Washington, D.C., while talking…

  5. 2019 CHD Awareness Fundraising Challenge

      Help us raise awareness and support patients and families all while earning awesome CCHD swag!! Our Goal: $50,000 Yep, it’s double our original goal! You guys are amazing! It is so easy to join the campaign Click here to create a Facebook fundraiser, then: Extend the end date to 2/28 to get in on all…

  6. 2018 Impact Report

    View and print this report as a PDF Letter from our Executive Director In August of 2018, the Pediatric Congenital Heart Association celebrated our 5th Anniversary. I can’t believe it’s only been 5 years since we realized there was a gap in advocacy for pediatric congenital heart disease and decided to take action. This action…

  7. Father’s Day – A Heart Dad How-To

    For Heart Dads new to CHD,  feeling a little lost, or those not sure where they fit in the CHD world, Aaron Carpenter shares what he found, after 8 years on the CHD roller coaster, worked best for him and his family. His tips just might help you too! I am the dad of two…

  8. 2017 Impact Report

    View and print this report as a PDF Letter from our Executive Director 2017 was a year of tremendous growth for the Pediatric Congenital Heart Association. We launched our state chapter program which had an immediate impact across the country by meeting patients and families where they are. Through the work of two Transparency summits…

  9. Patient Engagement Tool – The Care Partnership Pyramid

    It is often difficult for parents and loved ones to know what to do in caring for their child during hospital stays, and it can often be a difficult topic to discuss. Christine Martinenza, RN, and Janie Klug, MSN, have implemented this month’s Patient Engagement Tool, The Care Partnership Pyramid, at Nemours/Alfred I. duPont Hospital for…

  10. Making sense of congenital heart surgery data

    Conquering CHD is committed to empowering patients and families. Patients and families deserve essential information to help make important health care decisions. As this data becomes available it can be very hard to understand.  It is our hope that this resource can help.  For a .pdf version of this document, click here. When your child…

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