Blog
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Conquering CHD Fundraising Toolkit
“No one has ever become poor by giving.” – Anne Frank Welcome Welcome and Thank YOU for your interest in leading a fundraising event for Conquering CHD! We are so grateful for your efforts and support to conquer the most common birth defect. Please read the packet carefully and reach out to outreach@conqueringchd.org with any…
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Supporting Development in Children with CHD
Conquering CHD recognizes that with increasing knowledge of issues relating to long term outcomes for children with congenital heart disease, as a parent, it can be difficult to understand what it might mean for your child. In 2014, the American Heart Association published an article by leading neurodevelopmental and pscyho-social experts, including CCHD Medical Advisory Board Member,…
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Charting our future together: NHLBI’s Strategic Visioning Process
An announcement from the National Heart, Lung, and Blood Institute (NHLBI). Join the Conquering CHD in advocating for CHD research by sharing what you believe are the challenges facing children and adults with congenital heart disease. We encourage you to take a moment and participate: The National Heart, Lung, and Blood Institute (NHLBI) launched its…
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Volunteer Opportunities
Be a part of something bigger. The mission of the Conquering CHD is to Conquer Congenital Heart Disease. We know that we cannot do it alone. CCHD is growing rapidly in size, reach and programming! We are forming several new volunteer parent/patient committees and need your help to make them a success. Getting involved is…
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Collaboration for Change
The American College of Cardiology recently hosted a Summit for providers in leadership positions to share information to improve their practice. CCHD was privileged to join Sisters By Heart in the opportunity to help educate these same amazing providers about building stronger relationships with their patients and parents through transparency and empathy. We experienced an incredibly…
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Medical Advisory Board
Through Collaboration – we will Conquer CHD. We are thrilled that we have succeeded in bringing together some of the greatest medical professionals in the field to serve on our medical advisory board. These dedicated folks meet monthly, providing insight, direction and expertise to support the programming of CCHD. We are so grateful!! Brad Marino, MD,…
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Advocacy Success – Increased CHD Funding!
Your efforts are working! Congress is working hard to wrap things up before the end of the year. We are thrilled to report that the anticipated budget includes an increase of $1.1 million from $2.9 million to $4 million in 2015 to fund public health research and data collection through the Centers for Disease Control…
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Advocacy Success – Newborn Screening
CCHD has been supporting the efforts of the March of Dimes to ensure passage of the Newborn Screening Saves Lives Act. We have reached out to you in the past to contact your legislators about this key support for screening including CCHD screening. We wanted to you with an exciting update!! From our Friends at…
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#GivingTuesday
Click here to donate, today! Give Time. Give Money. Give Hope. Give Time: Join our 1 Voice / 40,000 Strong Campaign Give Money: Click here to donate, today! CCHD works hard to empower patients. Your support brings the patient voice to Washington D.C. through our upcoming Legislative Conference and ongoing advocacy activities as we work…
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Walking to Washington
Miles Walked: 610/860 Donations Earned: $500.00 Join me as I ‘walk the walk’ in preparation to ‘talk the talk.’ I am walking from the Conquering CHD National Office in Madison, WI ‘arriving’ in Washington D.C. just in time for the Congenital Heart Legislative Conference February 25-26, 2015. Follow my progress here. Just a few weeks left, a few hundred…
