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Welcome to Conquering CHD - Florida

 

At Conquering CHD - Florida, we exist to conquer the most common birth defect. We engage, listen, learn, and act. We create visibility and empower all impacted by CHD. We accomplish this through awareness, knowledge, community, and research.

 

*This State Chapter has received the Honor Roll Award for outstanding performance in support of our mission in 2019 and 2020.

PCHA State Chapter
PCHA State Chapter
PCHA State Chapter

About Us

Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through awareness, knowledge, community, and research programming. Local activities include:
  • Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
  • Online chat networks bringing people with similar experiences together
  • In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
  • Social events providing a safe environment to celebrate life and simple joys together
  • Physician education improving understanding of congenital heart disease from the patient and family perspective
  • Research promotion and participation helping promising developments become reality
  • Advocacy activities sharing our stories to improve federal research funding

Get Connected

For more information about the Florida chapter, email florida@conqueringchd.org. Join our online chat networks to connect with individuals and families with similar experienced in your region:

 

Facebook Social Groups

 

Florida Chat

South Florida Chat

 

Find us on Social Media:

Upcoming Events and Activities

  • Upcoming Events and Activities

    Dine 2 Donate

    Date: May 26, 2021 4pm - 9pm Location: Texas Roadhouse Florida City

    Hey South Florida! Join us at Texas Roadhouse in Florida City on May 26th from 4-9 pm. 10% of your total food purchase will be donated back to Conquering CHD - Florida. Be sure to present this flyer to your waitstaff. The proceeds go back into our mission to Give Knowledge, Give a Voice, and to Give Hope. We accomplish this through our Support Networks, Care Bag Program, Educational/Social Events for Families, Advocacy, and Research. Enjoy a night out to help a great mission.

    Get Flyer >

Meet the Florida Volunteer Board

Chapter President -  Jennifer Iguina

Chapter Vice President - Massiel DeCamps

Chapter Secretary - Christina Novak

Chapter Outreach Coordinator - Rachel Hall

Chapter Teen/Adult Coordinator - Christyna Sterling

Chapter Bereavement Coordinator - Ari Montuno

Lead Coordinator South Florida - Nicholas Wesner

Collaborations

We are thrilled to announce our partnerships have expanded with these incredible organizations, and businesses supporting our mission to conquer CHD here in Florida!

 

If your business, or organization would like to join our team in our effort to conquer the most common birth defect please reach out to us at florida@conqueringchd.org.

How To Help

Conquering CHD - Florida works in close collaboration with children’s hospitals throughout our state, to provide educational meetings, socials, and distribution of care kits. The Conquering CHD Care Kit is a gift from others who have been on a journey impacted by CHD. Families are often sent to hospitals that are outside of their local area to receive care, because of the specialized care needed. Filled with everyday items for a hospital stay, the kit also provides educational, hygiene, and comfort items to families who receive them.

 

Consider organizing a Conquering CHD Care Kit Drive & Packing Party! This is a fun way to pay it forward and engage outside organizations to get involved. Your church, school, community or civic organization can help collect the following:

 

● Travel-sized toiletries: shampoo, conditioner, body wash, lotion, deodorant, toothpaste, and toothbrush
● Hand sanitizer, dental floss, and chapstick
● Coloring books for children and adults; 8-packs of crayons, colored pencils, and markers
● Crossword puzzles, sudoku books, and decks of cards
● Single-serve snacks such as granola bars, crackers, goldfish, or fruit snacks
● Gum or mints

 

For questions on how to get started, or to request a kit, please contact florida@conqueringchd.org.

Give to Conquering CHD Florida

Conquering CHD - Florida is a 501(c)(3) tax-exempt nonprofit organization. Our tax-exempt or EIN number is: 82-1612741.

For additional documentation of our tax-exempt status, please contact florida@conqueringchd.org.

 

You can read more about our organization in our GuideStar profile.

 

Please give generously to support our state chapter activities!

 

 

Give to Conquering CHD - Florida

Request A Care Package

We've been there, we're here to help.

 

Did you or someone you know just receive a diagnosis of congenital heart disease? Are you or someone you know currently in the hospital awaiting or recovering from a heart surgery or procedure? Or, are you or someone you know a teen or adult patient looking for resources appropriate to that age group? Please fill out the form below to receive a free Conquering CHD Kit. Be sure to select the kit (In the Age of Patient line) that would be most useful to you at this time. These care packages were designed by those who have been in your shoes. We are CHD patients and families working together to help others cope with CHD diagnoses and maintain appropriate care. Our goal is to provide comfort, support and guidance. We hope to help you become “CHD Wise” and we want you to know, you are not alone. A huge network of patients and families is right here for you and we want to help. Once we’ve received your request, we will follow up with you via email and make arrangements to send the kit.

Request A Care Package
PCHA State Chapter
PCHA State Chapter
PCHA State Chapter
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