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Welcome to Conquering CHD - Florida

 

At Conquering CHD - Florida, we exist to conquer the most common birth defect. We engage, listen, learn, and act. We create visibility and empower all impacted by CHD. We accomplish this through awareness, knowledge, community, and research.

 

*This State Chapter has received the Honor Roll Award for outstanding performance in support of our mission in 2019 and 2020.

Questions to Ask Your Care Team

Transition Checklist

What What We Do

About Us

Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through awareness, knowledge, community, and research programming. Local activities include:
  • Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
  • Online chat networks bringing people with similar experiences together
  • In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
  • Social events providing a safe environment to celebrate life and simple joys together
  • Physician education improving understanding of congenital heart disease from the patient and family perspective
  • Research promotion and participation helping promising developments become reality
  • Advocacy activities sharing our stories to improve federal research funding

Get Connected

For more information about the Florida chapter, email florida@conqueringchd.org. Join our online chat networks to connect with individuals and families with similar experienced in your region:

 

Facebook Social Groups

 

Florida Chat
Statewide Family Network

South Florida Chat
Family Network for the South Florida Region

Teen & Adult Patients
Nationwide Network for Teen & Adult Patients Only

Bereaved Hearts
Nationwide Network for Heart Families whom have experienced a loss

 

Find us on Social Media:

Upcoming Events and Activities

    Give to Conquering CHD Florida

    Conquering CHD - Florida is a 501(c)(3) tax-exempt nonprofit organization. Our tax-exempt or EIN number is: 82-1612741.

    For additional documentation of our tax-exempt status, please contact florida@conqueringchd.org.

     

    You can read more about our organization in our GuideStar profile.

     

    Please give generously to support our state chapter activities!

     

     

    Give to Conquering CHD - Florida

    Meet the Florida Volunteer Board

    Chapter President - Charlotte McIntosh

    Chapter Vice President - Michelle Bartra

    Chapter Secretary - Leah Frazier 

    Chapter Teen & Adult/Social Media Coordinator - Dipti Amin

    Events Coordinator - Kristy Foster

     

    We have a few open volunteer board positions:

    -Chapter Treasurer

    -Fundraising Coordinator

    If you are interested in any of these Board Positions, please reach out. We'd love to have you on our team! florida@conqueringchd.org

    How you can help

    Conquering CHD - Florida works in close collaboration with children’s hospitals throughout our state, to provide educational meetings, socials, and distribution of care kits. The Conquering CHD Care Kit is a gift from others who have been on a journey impacted by CHD. Families are often sent to hospitals that are outside of their local area to receive care, because of the specialized care needed. Filled with everyday items for a hospital stay, the kit also provides educational, hygiene, and comfort items to families who receive them.

    Consider organizing a Conquering CHD Care Kit Drive & Packing Party! This is a fun way to pay it forward and engage outside organizations to get involved. Your church, school, community or civic organization can help collect the following:

    ● Travel-sized toiletries: shampoo, conditioner, body wash, lotion, deodorant, toothpaste, and toothbrush
    ● Hand sanitizer, dental floss, and chapstick
    ● Coloring books for children and adults; 8-packs of crayons, colored pencils, and markers
    ● Crossword puzzles, sudoku books, and decks of cards
    ● Single-serve snacks such as granola bars, crackers, goldfish, or fruit snacks
    ● Gum or mints

    For questions on how to get started, or to request a kit, please contact florida@conqueringchd.org.

    PCHA State Chapter
    PCHA State Chapter
    PCHA State Chapter
    PCHA State Chapter
    PCHA State Chapter
    PCHA State Chapter

    Conquering CHD Stories

    Grace

    Grace was born on March 7, 2017. At birth, to her parents heartbreak, she was diagnosed with complete atrioventricular canal defect (AVSD), as well as trisomy 21. She had open heart surgery on August 7, 2017 at just 5 months old. The first year of her life was hard on her family, especially the first...

    Full Story>