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Get Involved
  • National Committees
  • Stay in Touch
  • Connect with Others
  • Share your Story
  • Advocacy
  • Participate in Research
  • Transparency
  • Fundraise
  • Shop for Swag

National Committees

Get involved and connect with other patients and families to help drive and support the missions of Conquering CHD. You can learn more about our committees and get involved today.

  • PCHA Resource

    National Committee Information

Connecting with others

Through social media we offer open and closed forums to learn, chat, grow, and ask questions in a safe environment.

  • PCHA Resource

    Teen and Adult Patient Facebook Group

    This closed Facebook group is a place for teens and adults with CHD to connect with others who face similar struggles and celebrate similar victories. This group is for teen and adult patients only. Note: This is not a group sponsored by Conquering CHD, but can still be a place for connecting with others.

  • PCHA Resource

    Grupo de Facebook

    ¡Estamos Conquistando CHD! Esta página es para conectar a la comunidad del corazón. Conectarse y darse conocimiento el uno al otro. *No permitimos la recaudación de fondos en esta página.

  • PCHA Resource

    Bereaved Hearts

    A Facebook group by Conquering CHD to connect bereaved families affected by congenital heart disease

Conquering CHD Stories

Clark Ostrom

Clark Ostrom was born in 2015 at just 36 weeks. His mom, Carissa Ostrom, said they had no idea he had a bicuspid Aortic Valve and Aortic Stenosi heart defect. He went through his first procedure and balloon valvuloplasty (a cath procedure where they take a balloon and rip open the valve). Carissa then connected...

Full Story>
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